A Mother's Perspective on Chronic Childhood Illness: Parenting a Child with Cystic Fibrosis
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TL;DR
Through personal sharing, the reader is invited to develop a greater depth of understanding of the coping experience of a mother and her family who are caring for a child with a life-threatening chronic illness.
Abstract
This article includes a personal narrative about the first author's experience surrounding the diagnosis of her youngest child with cystic fibrosis, a fatal genetic disease. Sociological research on chronic illness is analyzed in the light of lived experience. Through personal sharing, the reader is invited to develop a greater depth of understanding of the coping experience of a mother and her family who are caring for a child with a life-threatening chronic illness.