Health and quality of life outcomes
Health and Quality of Life OutcomesPublished 1 December 2014Open access
Meenakshi Jolly, Winston Sequeira, Joel A. Block
Citations719
SJR quartileQ1
SJR score1.26
SNIP1.56
Generate an AI Snapshot to get a quick, structured summary of this paper.
Study Snapshot
ObjectiveStudy objective
MethodsResearch methodology
PopulationPopulation studied
Sample sizeSample sizes
OutcomesStudy outcomes here
ResultsStudy results comes here
LimitationsResearch study limitations comes here
A concise AI-generated summary of the paper will appear here once you click Generate AI Snapshot.
Keywords
Social SciencesEconomics, Econometrics and FinanceHealth Professions
Lara D. VeekenDevelopment and preliminary validation of a systemic lupus erythematosus-specific quality-of-life instrument (SLEQOL)
209 Citations2005Khai Pang Leong, Kok Ooi Kong +16 more
A new 40-item SLEQOL in English is developed and validated and showed that it is valid for use in SLE patients in Singapore and offers better content validity and responsiveness to change than the SF-36.
Seminars in Arthritis and RheumatismDisease-Specific Patient Reported Outcome Tools for Systemic Lupus Erythematosus
138 Citations2012Meenakshi Jolly, A. Simon Pickard +17 more
LupusPRO is a valid and reliable disease-targeted patient-reported health outcome tool that is generalizable to SLE patients in the United States of varied ethnic backgrounds and either gender.
Health and Quality of Life OutcomesPatient-reported outcome measures for systemic lupus erythematosus clinical trials: a review of content validity, face validity and psychometric performance
107 Citations2014Laura Holloway, L. Humphrey +6 more
It is concluded that SLE is a condition associated with high unmet need and considerable burden to patients, and the availability and need for disease-specific and generic patient-reported measures of relevant domains of disease signs and symptoms, HRQoL and work productivity are highlighted.
Age and AgeingIs the SF-36 suitable for assessing health status of older stroke patients?
82 Citations1998Paul O’Mahony, Helen Rodgers +3 more
This study has shown high response rates from older stroke patients to a postal questionnaire incorporating the SF-36, and results for the response effects suggest that, on its own, the instrument is not suitable for assessing outcome.
Arthritis Care & ResearchDevelopment and Validation of the Lupus Impact Tracker: A Patient‐Completed Tool for Clinical Practice to Assess and Monitor the Impact of Systemic Lupus Erythematosus
62 Citations2014Meenakshi Jolly, Cindy Garris +10 more
A brief patient‐completed instrument, the Lupus Impact Tracker (LIT), is derived and validated to assess and monitor the impact of systemic lupus erythematosus (SLE).
Journal of Neurology Neurosurgery & PsychiatryEffect sizes can be misleading: is it time to change the way we measure change?
54 Citations2010JC Hobart, SJ Cano +1 more
Rasch analysis at the individual person level showed the superior responsiveness of the FIMm, supporting clinical expectation, and its added value as a method for examining and comparing rating scale responsiveness at the group comparison level.
Arthritis Care & ResearchIdentification of relevant concepts of functioning in daily life in people with systemic lupus erythematosus: A patient Delphi exercise
53 Citations2008Bettina Bauernfeind, Martin Aringer +5 more
The high number of concepts resulting from this large-scale patient Delphi approach underlines the great variety of SLE patients' problems in daily functioning.
Lara D. VeekenLupusQoL-FR is valid to assess quality of life in patients with systemic lupus erythematosus
52 Citations2012Hervé Devilliers, Zahir Amoura +11 more
The LupusQoL-FR is valid to assess quality of life in SLE patients and a two-factor structure of physical and mental aggregated scales is a valid alternative to the original eight-domain structure.
LupusValidation of a disease-specific health-related quality of life measure in adult Italian patients with systemic lupus erythematosus: LupusQoL-IT
42 Citations2014Fabrizio Conti, Carlo Perricone +12 more
The Italian version of the LupusQoL© is a valid tool for adult patients with SLE and demonstrated substantial evidence of convergent validity in these patients when compared with equivalent items of the SF-36.
Clinical RheumatologyTurkish lupusPRO: cross-cultural validation study for lupus
31 Citations2013Arif Kaya, Berna Göker +10 more
The cross-cultural adaptation and validation study of the Turkish translated version of the LupusPRO is valid and appears to perform comparably to the English and Spanish language versions.
LupusCross-cultural validation of a disease-specific patient-reported outcome measure for lupus in Philippines
31 Citations2013SV Navarra, RMDV Tanangunan +4 more
English LupusPRO has fair psychometric properties among SLE patients in the Philippines, and is now available for inclusion in clinical trials and longitudinal studies to test responsiveness to change.
Neurology IndiaComparison of SF-36 and WHOQOL-100 in patients with stroke
30 Citations2008Demet Ünalan, Ferhan Soyuer +2 more
This study demonstrated that both the SF-36 and WHOQOL-100 quality of life scales are useful in the practical evaluation of patients with stroke.
LupusSpanish LupusPRO: cross-cultural validation study for lupus
29 Citations2013Meenakshi Jolly, S Toloza +14 more
The Spanish-translated version of the LupusPRO has fair psychometric properties and is now available to be included in clinical trials and in longitudinal studies for testing of responsiveness to change.
The Journal of RheumatologyCross-cultural Validation of a Disease-specific Patient-reported Outcome Measure for Systemic Lupus Erythematosus in Canada
24 Citations2013Josiane Bourré‐Tessier, Ann E. Clarke +5 more
The LupusPRO has fair psychometric properties among Canadian patients with SLE, and prospective studies to establish minimally important difference are continuing.
LupusThe French-Canadian validation of a disease-specific, patient-reported outcome measure for lupus
20 Citations2014Josiane Bourré‐Tessier, Ann E. Clarke +5 more
The French version of the LupusPRO has fair psychometric properties among French-Canadian patients with SLE, and confirmatory factor analysis showed a good fit.
Arthritis Care & ResearchRelevant Concepts of Functioning for Patients With Systemic Lupus Erythematosus Identified in a Delphi Exercise of Experts and a Literature Review
12 Citations2014Nicolai Leuchten, Bettina Bauernfeind +5 more
To identify in a Delphi exercise of international systemic lupus erythematosus experts and a systematic literature review the most relevant concepts that impact on the functioning of SLE patients.
