Good death in cancer care: a nationwide quantitative study
Annals of OncologyPublished 13 March 2007
Mitsunori Miyashita, Makiko Sanjo, Tatsuya Morita, Kei Hirai, Yosuke Uchitomi
Citations335
SJR quartileQ1
SJR score19.07
SNIP10.48
Generate an AI Snapshot to get a quick, structured summary of this paper.
Study Snapshot
ObjectiveStudy objective
MethodsResearch methodology
PopulationPopulation studied
Sample sizeSample sizes
OutcomesStudy outcomes here
ResultsStudy results comes here
LimitationsResearch study limitations comes here
A concise AI-generated summary of the paper will appear here once you click Generate AI Snapshot.
Abstract
We quantitatively identified 18 important domains that contribute to a good death in Japanese cancer care. The next step of our work should be to conduct a national survey to identify what is required to achieve a good death.
Keywords
PsychologyMedicine
JAMAFactors Considered Important at the End of Life by Patients, Family, Physicians, and Other Care Providers
2,477 Citations2000Karen E. Steinhauser
Although pain and symptom management, communication with one's physician, preparation for death, and the opportunity to achieve a sense of completion are important to most, other factors important to quality at the end of life differ by role and by individual.
JAMAFamily Perspectives on End-of-Life Care at the Last Place of Care
1,470 Citations2004Joan M. Teno
Many people dying in institutions have unmet needs for symptom amelioration, physician communication, emotional support, and being treated with respect, according to this evaluation of the US dying experience at home and in institutional settings.
JAMAQuality End-of-Life Care
1,283 Citations1999Peter Singer, Douglas K. Martin +1 more
These domains, which characterize patients' perspectives on end-of-life care, can serve as focal points for improving the quality of end- of- life care.
Annals of Internal MedicineIn Search of a Good Death: Observations of Patients, Families, and Providers
1,133 Citations2000Karen E. Steinhauser, Elizabeth C. Clipp +4 more
This study describes the attributes of a good death, as understood by various participants in end-of-life care, and compared the perspectives of different groups of persons who had experienced death in their personal or professional lives.
JAMAEthnicity and Attitudes Toward Patient Autonomy
961 Citations1995Leslie Blackhall
Korean-American and Mexican-American subjects were more likely to hold a family-centered model of medical decision making rather than the patient autonomy model favored by most of the African- American and European- American subjects.
Journal of Pain and Symptom ManagementPreparing for the End of Life
477 Citations2001Karen E. Steinhauser, Nicholas A. Christakis +5 more
Patients, families, and health care providers' preferences regarding preparation for the end of life were examined in qualitative focus group discussions and subsequently tested for generalizability in a quantitative national survey.
Journal of Pain and Symptom ManagementA Measure of the Quality of Dying and Death
437 Citations2002J. Randall Curtis, Donald L. Patrick +4 more
Clinicians caring for dying patients should focus on improving communication with the patient and family and improving symptom assessment and treatment and the potential role of the QODD in improving the quality of the dying experience.
Palliative MedicineSystematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals
383 Citations2004Nisar Ahmed, Janine Bestall +4 more
There is a need to improve education and knowledge about specialist palliative care and hospice care amongst health and social care professionals, patients and carers and standardized referral criteria need to be developed.
Journal of Pain and Symptom ManagementEvaluating the Quality of Dying and Death
353 Citations2001Donald L. Patrick, Ruth A. Engelberg +1 more
The proposed model uses personal preferences about the dying experience to inform evaluation of this experience by others after death, and will guide validation of after-death reports of the quality of dying experience and evaluation of interventions to improve quality of end-of-life care.
Journal of Pain and Symptom ManagementPatient-Focused, Family-Centered End-of-Life Medical Care
306 Citations2001Joan M. Teno, Virginia Casey +2 more
To develop a conceptual model for a retrospective survey of bereaved family members that incorporates both professional and family perspectives on what constitutes good care at the end of life, a qualitative literature review of existing professional guidelines and six focus groups were performed.
Journal of Pain and Symptom ManagementValidation of Toolkit After-Death Bereaved Family Member Interview
286 Citations2001Joan M. Teno, Brian Clarridge +3 more
Family members of persons who died with hospice service reported fewer problems in each of the six domains of medical care, gave a higher rating of the quality of care, and reported higher self-efficacy in caring for their loved ones.
Journal of Pain and Symptom ManagementGood Death in Japanese Cancer Care: A Qualitative Study
241 Citations2006Kei Hirai, Mitsunori Miyashita +3 more
The most frequently cited category was "Freedom from pain or physical/psychological symptoms" and the least common was "Having faith" and this study identified important components of a good death in Japan.
Palliative MedicinePerceptions of a 'good' death: a comparative study of the views of hospice staff and patients
228 Citations1996Sheila Payne, Alison Langley-Evans +1 more
Patients and staff characterised a 'good' death in terms of adequate symptom control, family involvement, peacefulness and lack of distress, while a 'bad' death was described as involving uncontrolled symptoms, lack of acceptance and being young.
Palliative & Supportive CareMeasuring quality of life at the end of life: Validation of the QUAL-E
214 Citations2004Karen E. Steinhauser, Elizabeth C. Clipp +5 more
The QUAL-E, a brief measure of quality of life at the end of life, demonstrates acceptable validity and reliability, is easy to administer, performs consistently across diverse demographic and disease groups, and is acceptable to seriously ill patients.
Social Science & MedicineCultural scripts for a good death in Japan and the United States: similarities and differences
147 Citations2003Susan Long
These Japanese and American data suggest somewhat different concerns and assumptions about human life and the relation of the person to the wider social world, but indicate similar concerns about the process of medicalised dying and the creation of meaning for those involved.
Social Science & MedicineDying peacefully: considering good death and bad death in Kwahu-Tafo, Ghana
135 Citations2003Sjaak van der Geest
People in Kwahu-Tafo, a rural town in Southern Ghana, regard a peaceful death as a 'good death', while the good death of a very old and successful person can be decried by the younger generation as a witch who managed to live long at the expense of young people who died prematurely.
Journal of Pain and Symptom ManagementEnd-of-Life Decisions and Advance Directives in Palliative Care
126 Citations1998Raymond Voltz, Akira Akabayashi +3 more
A checklist for content and procedural aspects in end-of-life decision-making is derived to provide the basis for developing an instrument to guide physicians, especially non-palliative care specialists, in communication with their patients and their families in this difficult clinical situation.
Supportive Care in CancerExistential concerns of terminally ill cancer patients receiving specialized palliative care in Japan
106 Citations2004Tatsuya Morita, Masako Kawa +6 more
Existential concerns of Japanese terminally ill cancer patients were categorized as relationship-related concerns, loss of control, burden on others, lossof continuity, uncompleted life task, hope/hopelessness, and acceptance/preparation, which seemed to encompass universal human suffering beyond cultural differences.
Palliative MedicineThe quality of medical care at the end-of-life in the USA: existing barriers and examples of process and outcome measures
97 Citations2004K. Robin Yabroff, Jeanne S. Mandelblatt +1 more
The proposed process and outcome measures for assessing optimal end-of-life care use cancer as a prototype, but are broadly applicable to other patient populations with life-threatening disease.
Journal of Palliative CareA Good Death in Rural Kenya? Listening to Meru Patients and Their Families Talk about Care Needs at the End of Life
73 Citations2003Liz Grant, Scott Murray +2 more
Patients with ongoing cancer or AIDS described how the support of close family relationships, and the care shown by their community and religious fellowships helped meet many of their emotional, social, and spiritual needs, but physical needs often went unmet.
Journal of Pain and Symptom ManagementFear of Death and Good Death Among the Young and Elderly with Terminal Cancers in Taiwan
65 Citations2005Jaw‐Shiun Tsai, Chih‐Hsun Wu +3 more
A significant negative correlation was observed between the degree of death fear and the total good death score in both groups at two days before death (P < 0.05) and the comprehensive care in the palliative care unit might relate to the relief of the death fear of terminal cancer patients.
Supportive Care in CancerDistress of inpatients with terminal cancer in Japanese palliative care units: from the viewpoint of spirituality
37 Citations2003Masako Kawa, Mami Kayama +6 more
It was revealed that in patients who possessed pictures of how they wished to die as their "anchors in life" and who were in a severe physical condition, distress increased and they became confused after their physical symptoms were relieved following admission to PCU.
Social Science & MedicineGood death and bad death in ancient Israel according to biblical lore
26 Citations2004Klaas Spronk
In the literature of ancient Israel common elements like the cult of the dead and the belief in retribution after death, are not explicitly mentioned and therefore do not function as a comfort for death.
Journal of Japan Academy of Nursing ScienceNurses' Perceptions of Death and Dying in a Hospice Setting
7 Citations1999Mitsuko Yoshida
Yoi-mitori was the most prominent factor in guiding the actual practices of the nurses and the nurses’ involvement in the approaches of the patients toward their own death.