Participatory Research with Native Community of Kahnawake Creates Innovative Code of Research Ethics
Canadian Journal of Public HealthPublished 1 March 1998Open access
Ann C. Macaulay, Treena Delormier, Alex M. McComber, Edward J. Cross, Louise Potvin, Gilles Paradis
Citations174
SJR quartileQ1
SJR score1.03
SNIP0.92
Generate an AI Snapshot to get a quick, structured summary of this paper.
Study Snapshot
ObjectiveStudy objective
MethodsResearch methodology
PopulationPopulation studied
Sample sizeSample sizes
OutcomesStudy outcomes here
ResultsStudy results comes here
LimitationsResearch study limitations comes here
A concise AI-generated summary of the paper will appear here once you click Generate AI Snapshot.
TL;DR
The background, development and implementation of an innovative Code of Research Ethics developed for a participatory research project with a Native community in Canada is described.
Abstract
Participatory research requires ethical guidelines to incorporate the needs of the partners, i.e., the researchers and the community. This paper describes the background, development and implementation of an innovative Code of Research Ethics developed for a participatory research project with a Native community in Canada. The document ensures that responsibility and control will be shared by both researchers and community throughout the project including joint publication of the results. It defines community control of data, means of resolving dissension at time of publication, incorporation of new researchers and the differences between community-based and academic researchers.
Keywords
Health Professions
Adult Education QuarterlyPrinciples for Participatory Action Research
742 Citations1991Robin McTaggart
Council of International Organizations for Medical Sciences
658 Citations2012Beatrice Gabriela Ioan
The Council for International Organizations of Medical Sciences seeks to facilitate and promote international activities in biomedical sciences, by maintaining relations with the United Nations and its specialized agencies, especially WHO and UNESCO.
Health Education QuarterlyHealth Promotion and Empowerment: Reflections on Professional Practice
370 Citations1994Ronald Labonté
It is argued that health promotion is not a social movement but a professional and bureaucratic response to the new knowledge challenges of social movements, and has both empowering and disempowering aspects.
Preventive MedicineThe Kahnawake Schools Diabetes Prevention Project: Intervention, Evaluation, and Baseline Results of a Diabetes Primary Prevention Program with a Native Community in Canada
237 Citations1997Ann C. Macaulay, Gilles Paradis +10 more
Implementing a Native community-based diabetes prevention program is feasible through participatory research that incorporates Native culture and local expertise through participation in a health promotion planning model.
Law Medicine and Health CareInternational Guidelines for Ethical Review of Epidemiological Studies
186 Citations1991
Health Education QuarterlyEvaluation of Health Education Programs: Current Assessment and Future Directions
158 Citations1995Barbara A. Israel, K. Michael Cummings +5 more
This article aims to present conceptual and technical design issues and options, describe different approaches to evaluation, highlight evaluation approaches that have been effective, critique the limitations of traditional evaluation approaches, and provide recommendations for evaluation designs, data collection methods, roles, responsibilities, and principles for evaluating interventions.
CancerParticipatory research in a native Hawaiian community: The Wai'anae cancer research project
81 Citations1996Doris Segal Matsunaga, Rachelle Enos +8 more
This project tested the effectiveness of a culturally appropriate intervention as a means of increasing breast and cervical cancer screening practices among Native Hawaiian women on the Wai'anae Coast of the island of O'ahu.
PubMedCommunity-based research as a tool for empowerment: the Haida Gwaii Diabetes Project example.
53 Citations1996Herbert Cp
The evolution of the Haida Gwaii Diabetes Project exemplifies how community-based family practice research can be a tool for empowerment for both the community of research participants and the community based members of the research team.
International Quarterly of Community Health EducationAppraising and Funding Participatory Research in Health Promotion
48 Citations2006M. Anne George, Mark Daniel +1 more
Detailed guidelines flowing from a review of experience in the field and consultation with groups engaged in participatory research are provided, how the nominal ways of conducting health research in populations need to adapt to meet the educational and policy expectations of participatoryResearch.
PubMedDemonstrating social accountability in medical education.
42 Citations1997Brian Hennen
The author considers the University of Toronto's Health, illness and the Community course for undergraduate medical students, described in this issue by Wasylenki and associates, to ensure social accountability in medical education.
SAGE Publications eBooksConducting research in the practice setting
40 Citations1993Martin J. Bass
This book focuses on research in the practice setting on how to identify and respond to community needs in the context of a primary care setting.
Environmental ConservationAssociation of Canadian Universities for Northern Studies
33 Citations1977Trevor Lloyd
Cambridge Quarterly of Healthcare EthicsMaking Research Consent Forms Informative and Understandable: The Experience of the Indian Health Service
29 Citations1994William L. Freeman
The mission of the Indian Health Service affects what research is done and how It is reviewed and managed and in turn affects the forms and process used to obtain informed consent.
The Medical Journal of AustraliaA model for minorities or for all?
26 Citations1992Ian Maddocks
The themes common to guidelines for research among Aborigines and Torres Strait Islanders are indicated and it is suggested that the guidelines raise questions about the control of research and the role of consumer groups that are of far‐reaching importance to medicine.
PubMedDiabetes mellitus and atherosclerosis: returning research results to the Mohawk community.
21 Citations1988Louis T. Montour, Ann C. Macaulay
The results of the 1985 study of vascular complications in adults with and without diabetes mellitus in the Mohawk community the Six Nations of the Confederacy are reported.
Canadian Journal of Physiology and PharmacologyEthics for working with communities of Indigenous Peoples
19 Citations1995Kim Scott, Olivier Receveur
The content and format of current ethical guidelines for working with Indigenous Peoples is reported on and directions for further development are highlighted.
PubMedMethodological challenges in evaluation of dissemination programs.
17 Citations1997Louise Potvin
This paper argues that: 1) the evaluation agenda should be broad and open in all phases of program development; 2) the need for outcome assessment should be present during the entire cycle of any program's life; and 3) there is a need to develop creative methodological approaches to address issues relevent to the evaluation of dissemination programs.