Unmet education and training needs of rheumatology health professionals in adolescent health and transitional care
Lara D. VeekenPublished 2 March 2004Open access
J. E. R. McDonagh, T. R. E. Southwood, Karen Shaw
Citations110
SJR quartileQ1
SJR score1.72
SNIP1.37
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TL;DR
Unmet education and training needs of health care professionals exist in key areas of transitional care and provide useful directions for the development of future training programmes.
Abstract
Unmet education and training needs of health care professionals exist in key areas of transitional care and provide useful directions for the development of future training programmes.
Keywords
MedicineHealth Professions
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PubMedLong-term health outcomes and quality of life in American and Italian inception cohorts of patients with juvenile rheumatoid arthritis. I. Outcome status.
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Lara D. VeekenTHE FUNCTIONAL AND PSYCHOLOGICAL OUTCOMES OF JUVENILE CHRONIC ARTHRITIS IN YOUNG ADULTHOOD
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Journal of Adolescent Health CareKnowledge and attitudes of health professionals toward adolescent health care
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Health PsychologyPsychosocial adaptation in juvenile rheumatic disease: A controlled evaluation.
96 Citations1987Andrew G. Billings, Rudolf H. Moos +2 more
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Archives of Disease in ChildhoodAdolescent health services---through their eyes
79 Citations1997A C K Oppong-Odiseng, E. Heycock
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Academic MedicinePhysiciansʼ assessment of deficiencies and desire for training in adolescent care
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