Specifying and facilitating family involvement in services to persons with developmental disabilities

The paper presents a conceptualization of involvement that was an outcome of a qualitative study of involvement from the perspective of family members themselves and identifies a process for promoting family involvement.

Abstract

This paper recognizes the important role of family involvement in services to people with developmental disabilities. The paper presents a conceptualization of involvement that was an outcome of a qualitative study of involvement from the perspective of family members themselves. The authors identify a framework of family involvement the composition of which incorporates four system levels (i.e. the individual, program/agency, community, society) and the five role opportunities for family members (i.e. treatment agent, planner, advocate, evaluator, and consultant/educator). Barriers to involvement are then delineated and the authors autline a process for promoting family involvement: 1) contracting for involvement; 2) developing a support system for involvement; and 3) monitoring and evaluating involvement.