Management behaviors: day-to-day adjustments to childhood chronic conditions.
PubMedPublished 1 February 1990
Janet A. Deatrick, Kathleen A. Knafl
Citations55
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TL;DR
The management behaviors component of the FMS model is highlighted and developed to guide further clinical exploration and research.
Abstract
To understand how families who have children with chronic conditions make daily adjustments to accommodate the children's special needs, the concept of management behaviors is explored. On a theoretical level, the adjustments are linked to an emerging conceptual model, family management style (FMS). As such, the management behaviors component of the FMS model is highlighted and developed to guide further clinical exploration and research.
Keywords
PsychologyMedicineHealth Professions
Research in Nursing & HealthHow families manage chronic conditions: An analysis of the concept of normalization
154 Citations1986Kathleen A. Knafl, Janet A. Deatrick
The origin and development of the concept normalization are traced and criteria are presented for distinguishing between normalization and other responses families make to a member's illness or disability.
PubMedFamily management style: concept analysis and development.
107 Citations1990Kathleen A. Knafl, Janet A. Deatrick
Following Sartori's framework for concept analysis, the authors analyzed the concept family management styles (FMS) as it relates to families in which there is a chronically ill or disabled child.
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It is argued that the parents' interactions with the child contain the essential feature of paradoxical communication, and an ethnographically based theoretical model of the social construction of sickness careers is introduced.
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The management styles used by the parents of 15 children and adolescents with osteogenesis imperfecta are described, in particular, the behavioural strategies related to providing a normalized existence for the child and the family.
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63 Citations1986Joan M. Anderson
This paper analyses the experiences of Anglo-Canadian and immigrant Chinese families with a chronically ill child by using the idea that the social organization and ideology of health care services generate particular illness experiences.
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Following up among 20 parents of chronically-ill children, the author was able to identify a number of principles which underlined the 'normalizing' tactics.
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Children s Health CareMaternal Stress and Repeated Hospitalizations of Children Who Are Physically Disabled
24 Citations1989Sharon Ogden Burke, Edith A. Costello +1 more
Findings from research on single, brief hospitalizations of essentially healthy children may not apply to repeatedly hospitalized, disabled children and their parents.
