Comparison of three generic questionnaires measuring quality of life in adolescents and adults with cystic fibrosis: The 36-item short form health survey, the quality of life profile for chronic diseases, and the questions on life satisfaction
Quality of Life ResearchPublished 1 January 2001
Lutz Goldbeck, Tim G. Schmitz
Citations65
SJR quartileQ1
SJR score1.44
SNIP1.64
Generate an AI Snapshot to get a quick, structured summary of this paper.
Study Snapshot
ObjectiveStudy objective
MethodsResearch methodology
PopulationPopulation studied
Sample sizeSample sizes
OutcomesStudy outcomes here
ResultsStudy results comes here
LimitationsResearch study limitations comes here
A concise AI-generated summary of the paper will appear here once you click Generate AI Snapshot.
TL;DR
The different validity of the instruments has to be considered in chosing a questionnaire appropriate to the purpose of measuring and can be overcome by multimethod designs and by developing disease-specific scales.
Abstract
The different validity of the instruments has to be considered in chosing a questionnaire appropriate to the purpose of measuring. Shortcomings of each instrument can be overcome by multimethod designs and by developing disease-specific scales.
Keywords
MedicineEconomics, Econometrics and Finance
European Journal of Psychological AssessmentQuestions on Life Satisfaction (FLZM) - A Short Questionnaire for Assessing Subjective Quality of Life
323 Citations2000Gerhard Henrich, Peter Herschbach
A short questionnaire for assessing general and health-related quality of life and recent findings obtained with the instrument reported and plans for developing additional modules outlined are outlined.
CHEST JournalThe Quality of Well-being in Cystic Fibrosis
181 Citations1989David M. Orenstein, Patricia A. Nixon +2 more
The QWB scale is an objective measure that is significantly correlated with measures of performance and pulmonary function in CF and takes into account general well-being, not just pulmonary health, adding an important dimension to the care of patients with CF.
ThoraxQuality of life in patients with cystic fibrosis and their parents: what is important besides disease severity?
112 Citations1998Doris Staab, Kerstin Wenninger +7 more
The findings support the important role of cognitive and behavioural factors in specific subjective health perception and ways of coping in the adaptation to this severe chronic disease, both in patients themselves and in parents.
Pediatric PulmonologyQuality of life in patients with cystic fibrosis
103 Citations1997W. de Jong, Adrian A. Kaptein +5 more
The results show that CF affects quality of life in adults primarily due to a limitation in physical functioning, and the effects of programs aimed to improve exercise capacity and reduce dyspnea on CF patients'quality of life need to be evaluated.
ThoraxQuality of life in adults with cystic fibrosis.
64 Citations1996Jo Congleton, M.E. Hodson +1 more
Men and women with cystic fibrosis have different patterns of perceivedquality of life, and there is an age related trend of perceived quality of life in men in some dimensions.
Gene TherapyGene therapy for cystic fibrosis: a psychosocial study of trial participants
14 Citations1998C. Blair, E Kacser +1 more
Investigation of attitudes, expectations, knowledge and psychological functioning of participants in a phase I safety trial of a single application of gene therapy to cystic fibrosis patients suggests that there are unlikely to be major psychological contraindications to proceeding with gene therapy research in this patient group.
Zeitschrift für Differentielle und Diagnostische PsychologieNormierung der Skalen “Profil der Lebensqualität Chronisch Kranker” an einer repräsentativen deutschen Stichprobe
14 Citations2001Wilfried Laubach, Christian Schröder +2 more
Der Vergleich der Normwerte mit den Mittelwerten von klinischen Gruppen zeigt signifikante Unterschiede and kann als Bestatigung fur die Validitat des Instr...
Monatsschrift KinderheilkundeLebensqualität von Jugendlichen und Erwachsenen mit Mukoviszidose
12 Citations1999Lutz Goldbeck, Tim G. Schmitz +1 more
As life expectancy increases in cystic fibrosis (CF), it becomes more important to recognize the quality of life (QoL) in adolescence and adulthood and to identify factors influencing QoL.
Zeitschrift für Medizinische PsychologieDer Fragebogen zur Lebensqualität bei Cystischer Fibrose Reliabilität und Validität der deutschen Adaptation
7 Citations1999Kerstin Wenninger, Doris Staab +2 more
The results suggest that the CFQ is a promising tool in asessing HRQOL in German CF populations.
