Adults with cystic fibrosis report important and unmet needs for disease information
Journal of Cystic FibrosisPublished 24 April 2007Open access
Gregory S. Sawicki, Deborah E. Sellers, Kimberly McGuffie, Walter M. Robinson
Citations50
SJR quartileQ1
SJR score1.77
SNIP1.35
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TL;DR
Clinicians caring for adult CF patients should not solely rely socio-demographic factors or markers of disease severity as signals for providing comprehensive information on disease self-management and future planning.
Abstract
Adults with CF rated information on treatment topics as most important. In contrast, patients were more likely to report information needs on disease self-management and future planning as unmet. Clinical and socio-demographic patient characteristics were not systematically associated with unmet informational needs. Clinicians caring for adult CF patients should not solely rely socio-demographic factors or markers of disease severity as signals for providing comprehensive information on disease self-management and future planning.
Keywords
MedicineHealth Professions
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