‘Practical’ resources to support patient and family engagement in healthcare decisions: a scoping review
BMC Health Services ResearchPublished 15 April 2014Open access
Katharina Kovacs Burns, M. Bellows, Carol Eigenseher, Jennifer Gallivan
Citations108
SJR quartileQ1
SJR score1.17
SNIP1.31
Generate an AI Snapshot to get a quick, structured summary of this paper.
Study Snapshot
ObjectiveStudy objective
MethodsResearch methodology
PopulationPopulation studied
Sample sizeSample sizes
OutcomesStudy outcomes here
ResultsStudy results comes here
LimitationsResearch study limitations comes here
A concise AI-generated summary of the paper will appear here once you click Generate AI Snapshot.
TL;DR
This scoping review for patient/family engagement tools and guides is a good start for a resource inventory and can guide the content development of a patient engagement resource kit to be used by patients/families, healthcare providers and administrators.
Abstract
Patient engagement is very complex. This scoping review for patient/family engagement tools and guides is a good start for a resource inventory and can guide the content development of a patient engagement resource kit to be used by patients/families, healthcare providers and administrators.
Keywords
Health Professions
International Journal of Social Research MethodologyScoping studies: towards a methodological framework
35,571 Citations2005Hilary Arksey, Lisa O’Malley
A framework for conducting a scoping study is outlined based on recent experiences of reviewing the literature on services for carers for people with mental health problems and it is suggested that a wider debate is called for about the role of the scoped study in relation to other types of literature reviews.
Journal of the American Institute of PlannersA Ladder Of Citizen Participation
15,718 Citations1969Sherry R. Arnstein
Applied Thematic Analysis
7,746 Citations2012Greg Guest, Kathleen M. MacQueen +1 more
This chapter discusses themes and Codes, Validity and Reliability (Credibility and Dependability) in Qualitative Research and Data Analysis, and Integrating Qualitative and Quantitative Data.
BMJEffectiveness of strategies for informing, educating, and involving patients
1,119 Citations2007Angela Coulter, Jo Ellins
Any strategy to reduce health inequalities must promote health literacy and evidence that strategies to strengthen patient engagement are effective is substantial, argue Angela Coulter and Jo Ellins.
Social Science & MedicineDeliberations about deliberative methods: issues in the design and evaluation of public participation processes
968 Citations2003Julia Abelson, Pierre-Gerlier Forest +4 more
This critical review of the literature is used as the basis for developing general principles that can be used to guide the design and evaluation of public involvement processes for the health-care sector in particular.
Cochrane Database of Systematic ReviewsMethods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material
560 Citations2006Elin Strømme Nilsen, Hilde Tinderholdt Myrhaug +3 more
International Journal for Quality in Health CarePromoting patient-centered care: a qualitative study of facilitators and barriers in healthcare organizations with a reputation for improving the patient experience
521 Citations2011Karen Luxford, Dana Gelb Safran +1 more
Organizations that have succeeded in fostering patient-centered care have gone beyond mainstream frameworks for quality improvement based on clinical measurement and audit and have adopted a strategic organizational approach to patient focus.
LSHTM Research Online (London School of Hygiene and Tropical Medicine)Synthesising research evidence
337 Citations2001Nicholas Mays, Emilie Roberts +1 more
Health PolicyBringing ‘the public’ into health technology assessment and coverage policy decisions: From principles to practice
250 Citations2006Julia Abelson, Mita Giacomini +2 more
A framework is offered that clearly distinguishes specific roles for the public, and relates them to several layers of policy analysis and policy making where 'the public' may engage in different tasks, as well as a model that can be used to characterize and analyze different approaches across jurisdictions.
Studying the Organisation and Delivery of Health Services
195 Citations2004
Social Science & MedicineChallenges of citizen participation in regional health authorities
138 Citations2002C. James Frankish, Brenda Kwan +3 more
This review of the above challenges suggests that each of the concerns remains a significant threat to meaningful public participation in regional health authorities.
Journal of Advanced NursingValuing people as individuals: development of an instrument through a survey of person‐centredness in secondary care
106 Citations2001Joanne Coyle, Brian Williams
The study found that patients' identity was threatened by experiences perceived as dehumanizing, objectifying, disempowering and devaluing, and it was revealed that women were more at risk than men of 'threats to identity' in health care settings.
Health Economics Policy and LawPublic involvement policies in health: exploring their conceptual basis
93 Citations2006Suzanne Wait, Ellen Nolte
The role that public involvement may play in contributing to health systems that are responsive to the needs and priorities of the public, and, ultimately, providing better health and health care services to the community at large is understood.
Journal of Clinical NursingPatient and public involvement: models and muddles
91 Citations2009Liz Forbat, Gill Hubbard +1 more
It is concluded that one of the greatest barriers to truly integrating patient involvement into health services, policy and research is the conceptual muddle with which involvement is articulated, understood and actioned.
Handbook on Citizen Engagement: Beyond Consultation
67 Citations2008Amanda Sheedy, Mary MacKinnon +3 more
Healthcare QuarterlyInvolving Stakeholders in Healthcare Decisions - The Experience of the National Institute for Health and Clinical Excellence (NICE) in England and Wales
48 Citations2005Anthony J. Culyer
Key messages are that client involvement in decision-making is possible and can work well, but it demands commitment from the entire organization, specific managerial arrangements and, depending on the circumstances, it can be costly.
Journal of Interprofessional CareCan the patient be on our team? An operational approach to patient involvement in interprofessional approaches to safe care
45 Citations2006Amanda Howe
It is argued that involving patients in safety issues will only happen when staff are motivated by real rather than hypothetical needs, and will largely involve actions taken at an interpersonal level during routine health care.
Journal of Ambulatory Care ManagementInvolving Citizens and Patients in Health Research
18 Citations2010Rosa Venuta, Ian D. Graham
The current context for public consultation in Canada's federal health care system, the new CIHR citizen engagement framework is described, and some of the challenges and benefits of engaging citizens in CIHR's research processes, including participating in decision making and informing strategic priorities are identified.
Collegian Journal of the Royal College of Nursing AustraliaFacilitating consumer participation: An approach to finding the ‘right’ consumer
16 Citations2010Brenda Happell
Concerns raised in the quest to find the "right" consumer, including: finding a consumer without an axe to grind; ensuring the consumer is representative of broader views; health professionals as consumer representatives are addressed.
Journal of Health Organization and ManagementInvolving the public in NHS service planning
16 Citations2007Silvia Anton, Lorna McKee +2 more
There are uncertainty and a lack of consensus about how assessment of public involvement should be undertaken, which emphasise the need to recognise the diverse nature ofpublic involvement, which may require assessment to be employed flexibly at each individual NHS Board level.
PATIENT ENGAGEMENT AND PATIENT DECISION-MAKING IN ENGLAND
12 Citations2004Harry Cayton
Lenus, The Irish Health Repository (Dr Steevens Hospital Library)Service user involvement in the Irish health service: a review of the evidence / researched by Rachel McEvoy, Celia Keenaghan, Aveen Murray
6 Citations2008Rachel McEvoy
Journal of Ambulatory Care ManagementAssessing the Involvement of the Patient Community in European Commission Co-Funded Health Projects
5 Citations2010L. Sanna
The European Patients' Forum–led Value+ project has represented the first effort ever made to produce an overarching EU-wide analysis of current practices and trends regarding patient involvement in EU health-related projects.
Healthcare Management ForumDeciding Whether to Engage the Public on Health Care Issues
3 Citations2008Roger Chafe, Doreen Neville +2 more
Six questions decision-makers must consider when deciding whether to formally engage the public or other stakeholders around a particular health care issue focus on the clarity of the issue, the appropriateness, the extent to which there are viable options, the role for the public, and consideration of the expected advantages and disadvantages.
British Journal of Community NursingReal users’ experiences fall short of the mark
1 Citations2002Alison While
User involvement in health service planning and delivery is central to Government plans, but in reality much of it is becoming tokenism of the worst sort.
