Taxonomy of the burden of treatment: a multi-country web-based qualitative study of patients with chronic conditions
BMC MedicinePublished 13 May 2015Open access
Viet-Thi Tran, Caroline Barnes, Víctor M. Montori, Bruno Falissard, Philippe Ravaud
Citations246
SJR quartileQ1
SJR score2.85
SNIP1.93
Generate an AI Snapshot to get a quick, structured summary of this paper.
Study Snapshot
ObjectiveStudy objective
MethodsResearch methodology
PopulationPopulation studied
Sample sizeSample sizes
OutcomesStudy outcomes here
ResultsStudy results comes here
LimitationsResearch study limitations comes here
A concise AI-generated summary of the paper will appear here once you click Generate AI Snapshot.
TL;DR
The authors' taxonomy of the burden of treatment, provided by patients with chronic conditions from different countries and settings, supports the development of tools to ascertain theurden of treatment and highlights potential targets for interventions to minimize it.
Abstract
Our taxonomy of the burden of treatment, provided by patients with chronic conditions from different countries and settings, supports the development of tools to ascertain the burden of treatment and highlights potential targets for interventions to minimize it.
Keywords
MedicineEconomics, Econometrics and Finance
Health Measurement Scales: A Practical Guide to Their Development and Use
9,651 Citations1989David L. Streiner, Geoffrey R. Norman +1 more
This chapter discusses the design of items, their properties, and methods of administration, and some of the considerations that went into designing the items.
Handbooks of sociology and social researchHandbook of Social Psychology
7,552 Citations2013John DeLamater, Amanda K. Ward
The LancetEpidemiology of multimorbidity and implications for health care, research, and medical education: a cross-sectional study
7,024 Citations2012Karen Barnett, Stewart W Mercer +4 more
The findings challenge the single-disease framework by which most health care, medical research, and medical education is configured, and a complementary strategy is needed, supporting generalist clinicians to provide personalised, comprehensive continuity of care, especially in socioeconomically deprived areas.
The LancetQualitative research: standards, challenges, and guidelines
5,055 Citations2001Kirsti Malterud
Health Services ResearchQualitative Data Analysis for Health Services Research: Developing Taxonomy, Themes, and Theory
3,485 Citations2007Elizabeth H. Bradley, Leslie Curry +1 more
Qualitative inquiry can improve the description and explanation of complex, real-world phenomena pertinent to health services research as they use these methods themselves or collaborate with qualitative researchers from a wide range of disciplines.
JAMAClinical Practice Guidelines and Quality of Care for Older Patients With Multiple Comorbid Diseases
2,475 Citations2005Cynthia M. Boyd, Jonathan Darer +4 more
It is suggested that adhering to current CPGs in caring for an older person with several comorbidities may have undesirable effects and could create perverse incentives that emphasize the wrong aspects of care for this population and diminish the quality of their care.
BMJQualitative Research: Qualitative interviews in medical research
1,628 Citations1995Nicky Britten
This paper provides an outline of qualitative interview techniques and their application in medical settings and explains the rationale for these techniques and shows how they can be used to research kinds of questions that are different from those dealt with by quantitative methods.
The Annals of Family MedicineA Systematic Review of Prevalence Studies on Multimorbidity: Toward a More Uniform Methodology
1,125 Citations2012Martin Fortin, Moira Stewart +3 more
Marked variation exists among studies of the prevalence of multimorbidity with respect to both methodology and findings, and investigators should carefully consider the specific diagnoses included and their number, as well as the operational definition of multimOrbidity.
Journal of Advanced NursingSampling hard to reach populations
1,049 Citations1997Jean Faugier, Mary Sargeant
The sampling methodology used by Faugier (1996) in her study of prostitutes, HIV and drugs is used as a current example within this context.
New England Journal of MedicinePotential Pitfalls of Disease-Specific Guidelines for Patients with Multiple Conditions
916 Citations2004Mary E. Tinetti, Sidney T. Bogardus +1 more
The authors emphasize the importance of considering patients' quality of life, preferences, and values when prescribing medications for those with multiple chronic illnesses.
Herzschrittmachertherapie + ElektrophysiologieThe Good Research Guide
879 Citations2003Martyn Denscombe
Algorithms and strategies to improve catheter ablation results have been developed and evaluated especially on patients with dilated cardiomyopathy (DCM) to further improve outcomes and to acquaint the reader with the current strategies and state of knowledge.
New England Journal of MedicineLanguage Barriers to Health Care in the United States
810 Citations2006Glenn Flores
49.6 million Americans speak a language other than English at home, yet many patients who need medical interpreters have no access to them, and language barriers can have deleterious effects.
BMJWe need minimally disruptive medicine
710 Citations2009Carl May, Víctor M. Montori +1 more
The burden of treatment for many people with complex, chronic, comorbidities reduces their capacity to collaborate in their care, and care must be less disruptive to be effective.
Journal of Clinical EpidemiologyCumulative complexity: a functional, patient-centered model of patient complexity can improve research and practice
677 Citations2012Nathan D. Shippee, Nilay D. Shah +3 more
A cumulative complexity model is developed, which integrates existing literature and emphasizes how clinical and social factors accumulate and interact to complicate patient care, and has implications for analytic design, clinical epidemiology, and clinical practice.
BMJGrounded theory, mixed methods, and action research
556 Citations2008Lorelei Lingard, Mathieu Albert +1 more
These commonly used methods are appropriate for particular research questions and contexts and may be appropriate for different research contexts.
BMJAdapting clinical guidelines to take account of multimorbidity
530 Citations2012Bruce Guthrie, Katherine Payne +3 more
Care of patients with multimorbidity could be improved if new technology is used to bring together guidelines on individual conditions and tailor advice to each patient’s circumstances, say Bruce Guthrie and colleagues.
The American Journal of MedicineThe end of the disease era
467 Citations2004Mary E. Tinetti, Terri R. Fried
Clinical decision making for all patients should be predicated on the attainment of individual goals and the identification and treatment of all modifiable biological and nonbiological factors, rather than solely on the diagnosis, treatment, or prevention of individual diseases.
Health ExpectationsBurden of treatment for chronic illness: a concept analysis and review of the literature
398 Citations2013Adem Sav, Michelle A. King +6 more
Treatment burden, the burden associated with the treatment and management of chronic illness, has not yet been well articulated.
BMJ OpenExamining different measures of multimorbidity, using a large prospective cross-sectional study in Australian general practice
377 Citations2014Christopher Harrison, Helena Britt +2 more
Patient Related Outcome MeasuresBuilding a measurement framework of burden of treatment in complex patients with chronic conditions: a qualitative study
355 Citations2012David T. Eton, Djenane Ramalho de Oliveira +5 more
A conceptual framework of issues descriptive of burden of treatment from the perspective of the complex patient is built, as a first step in the development of a new patient-reported measure.
The Annals of Family MedicineUnderstanding Patients' Experiences of Treatment Burden in Chronic Heart Failure Using Normalization Process Theory
351 Citations2011Katie Gallacher, Carl May +2 more
The findings suggest that NPT is a theoretical framework that facilitates understanding of experiences of health care work at the individual, as well as the organizational, level and lay the foundation for a new target for treatment and quality improvement efforts toward patient-centered care.
JAMALanguage Barriers in Medicine in the United States
326 Citations1995Steven Woloshin
It is through language that physicians and patients achieve an empathic connection that may be therapeutic in itself and millions of US residents cannot have this connection with their physician because of language barriers.
BMC MedicineDevelopment and description of measurement properties of an instrument to assess treatment burden among patients with multiple chronic conditions
280 Citations2012Viet-Thi Tran, Víctor M. Montori +4 more
This study provides the first valid and reliable instrument assessing the treatment burden for patients across any disease or treatment context and could help in the development of treatment strategies that are both efficient and acceptable for patients.
BMC MedicineAdaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform
244 Citations2014Viet-Thi Tran, Magdalena Harrington +4 more
It is found that the English TBQ is a reliable instrument in this population, and evidence supporting the construct validity for its use to assess treatment burden for patients with one or more chronic conditions in English-speaking countries is provided.
Journal of General Internal MedicineBRIEF REPORT: The burden of diabetes therapy
201 Citations2005Sandeep Vijan, Rodney A. Hayward +2 more
Injected insulin regimens are viewed as highly burdensome by patients, although this burden is attenuated by experience, and adherence to self-management is strongly and independently correlated with views of treatment burden.
Health & Social Care in the Community‘You say treatment, I say hard work’: treatment burden among people with chronic illness and their carers in Australia
197 Citations2013Adem Sav, Elizabeth Kendall +5 more
The findings revealed four interrelated components of treatment burden: financial burden, time and travel burden, medication burden and healthcare access burden, which underscores the urgent need to identify patients overwhelmed by their treatment and develop 'individualised' treatment options to alleviate treatment burden.
PLoS MedicineUncovering Treatment Burden as a Key Concept for Stroke Care: A Systematic Review of Qualitative Research
192 Citations2013Katie Gallacher, Deborah Morrison +9 more
In a systematic review of qualitative research, Katie Gallacher and colleagues examine the evidence related to treatment burden after stroke from the patient perspective from a patient perspective.
Family PracticeMultimorbidity, service organization and clinical decision making in primary care: a qualitative study
182 Citations2011Peter Bower, Wendy Macdonald +7 more
Primary care professionals identify a number of challenges in care for multimorbidity and adopt a particular model of decision making to deliver care for multiple individual conditions, however, they did not describe specific decision making around managing multimOrbidity per se.
PubMedTime requirements for diabetes self-management: too much for many?
143 Citations2005Louise B. Russell, Dong‐Churl Suh +1 more
The time required by recommended self-care is substantial, and exercise and diet, required for self-Care of many chronic conditions, are the most time-consuming tasks.
European Journal of EpidemiologyNew times, new needs; e-epidemiology
141 Citations2007Alexandra Ekman, Jan‐Eric Litton
The traditionally used methods such as face-to-face and telephone interviews as well as paper-questionnaires are increasingly failing to produce good qualitative results within financially feasible limits and the Internet presents a powerful alternative.
Patient Related Outcome MeasuresA systematic review of patient-reported measures of burden of treatment in three chronic diseases
140 Citations2013David T. Eton, Tarig Elraiyah +8 more
Available measures of treatment burden in single diseases can inform derivation of a patient-centered measure of the construct in patients with multiple chronic conditions, and patients should take part in developing the measure to ensure salience and relevance.
Medical CareHealthcare Task Difficulty Among Older Adults With Multimorbidity
139 Citations2014Cynthia M. Boyd, Jennifer L. Wolff +8 more
The findings of this study establish the construct validity of the HCTD scale.
Diabetes CareOverwhelmed Patients
93 Citations2011Krista Bohlen, Elizabeth Scoville +3 more
BOT discussions usually arise during visits but rarely beget problem-solving efforts, representing missed opportunities for reducing treatment-related disruptions in the lives of patients with diabetes, which may affect adherence and well-being.
JAIDS Journal of Acquired Immune Deficiency SyndromesThe Development of PROQOL-HIV
87 Citations2011Martin Duracinský, S. Herrmann +8 more
The pilot PROQOL-HIV instrument captures a wide range of physical, mental, and social issues to their condition, many of which were not measured by existing HIV-HRQL instruments, and is sensitive to sociocultural context, disease stage, and HAART.
Schizophrenia ResearchA new approach to discourse analysis in psychiatry, applied to a schizophrenic patient's speech
65 Citations1997M. C. Noël-Jorand, Max Reinert +2 more
This computer-assisted method of discourse analysis (Alceste-software) made it possible to investigate various language disturbances at the same time and at different levels and is particularly adapted for analysing the schizophrenic's speech.
International Journal of Law and PsychiatryDoing time: A qualitative study of long-term incarceration and the impact of mental illness
64 Citations2009Suzanne Yang, Alane Kadouri +3 more
The themes evoked by mentally ill individuals in the sample suggest that their reactions to the prison environment arise in part from aspects of their psychiatric symptoms, and this may have relevance to future mental health policy and practices in criminal corrections.
PLoS MedicineA Brief Patient-Reported Outcomes Quality of Life (PROQOL) Instrument to Improve Patient Care
52 Citations2013Jennifer L. Ridgeway, Timothy J. Beebe +12 more
The development of the Patient-Reported Outcomes Quality of Life (PROQOL) instrument, which captures and stores patient-recorded outcomes in the medical record for patients with diabetes, is described.
Chronic IllnessTreatment burden among people with chronic illness: what are consumer health organizations saying?
24 Citations2012Adem Sav, Sara S. McMillan +5 more
Medication burden, which included aspects such as multiple medications, side effects, stigma and adverse events resulting from medication use, emerged as the most significant and prevalent theme and was considered to be particularly burdensome.
