Clinical trials in palliative care: an ethical evaluation
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TL;DR
In palliative care, the needs and wishes of the patient set the norm while participation in experimental trials is potentially harmful for the patient, and the notions of authenticity and hope can be illuminative.
Abstract
On first sight, clinical trials do not seem to fit well within the concept of palliative care. In palliative care, the needs and wishes of the patient set the norm while participation in experimental trials is potentially harmful for the patient. The dilemma seems hard to solve as optimal care for the dying and improvement of treatment for future patients are both imperative. Yet, the one seems to exclude the other. However, on closer examination it becomes less evident that clinical trials in palliative care confront us with an unsolvable dilemma. Some patients' lives may gain meaning through participation in trials out of solidarity with future patients. In order to clarify this, the notions of authenticity and hope can be illuminative.