Health-related quality of life in childhood disorders: A modified focus group technique to involve children
Quality of Life ResearchPublished 1 January 2001
Gabriel M. Ronen, Peter Rosenbaum, Mary Law, David L. Streiner
Citations120
SJR quartileQ1
SJR score1.44
SNIP1.64
Generate an AI Snapshot to get a quick, structured summary of this paper.
Study Snapshot
ObjectiveStudy objective
MethodsResearch methodology
PopulationPopulation studied
Sample sizeSample sizes
OutcomesStudy outcomes here
ResultsStudy results comes here
LimitationsResearch study limitations comes here
A concise AI-generated summary of the paper will appear here once you click Generate AI Snapshot.
TL;DR
The study demonstrated that the modified focus groups process was a powerful exploratory experience eliciting meaningful and important issues in quality of life beyond what parents and health professionals expected, and helped identify HRQL elements in childhood epilepsy.
Abstract
Modified focus groups are appropriate and suitable to explore quality of life issues in pre-adolescent children with a chronic medical condition. The process is feasible and trustworthy.
Keywords
Medicine
Qualitative evaluation and research methods
21,737 Citations1990Michael Quinn Patton
Qualitative Data Analysis
17,446 Citations2008
Qualitative data is extremely varied in nature and can include everything from field research where one lives in another context or culture for a period of time to photographs that illustrate some aspect of the phenomenon.
Journal of Psychosomatic ResearchQualitative data analysis (2nd ed)
5,606 Citations1996Janice M. Morse
Focus Groups: Theory and Practice
3,737 Citations1990David W. Stewart, Prem N. Shamdasani
DigitalGeorgetown (Georgetown University Library)Quality of life and pharmacoeconomics in clinical trials
1,863 Citations1996Bert Spilker
The Second Edition of this groundbreaking work refines the art and science of quality of life assessment and pharmacoeconomics and redefines the role of these evaluation parameters in clinical trials and health care decision-making.
Archives of Disease in ChildhoodMeasuring quality of life
749 Citations1997Meriel Jenney, S Campbell
The most parsimonious approach to assessment includes modular assessment of generic and disease-specific QoL, which is increasingly recognised by both researchers and clinicians.
Archives of Disease in ChildhoodChildren's quality of life measures
262 Citations1997Christine Eiser
It is now apparent that statistics based on survival may not accurately reflect the degree to which quality of life is compromised in the longer term, given the incidence of both physical and psychological difficulties reported by some survivors.
Studies in Family PlanningConducting Focus Group Sessions
259 Citations1981Evelyn Folch-Lyon, John F. Trost
Focus group sessions are qualitative research technique widely used in private industry to gain insights into attitudes opinions motivations and problems as they relate to human behavior and are now being applied more extensively in the public sector to address issues related to the marketing of products and services.
Evaluation ReviewUsing Focus Groups to Discuss Sensitive Topics with Children
191 Citations1995Marilyn J. Hoppe, Elizabeth A. Wells +3 more
Journal of Pediatric Oncology NursingFatigue in Children and Adolescents With Cancer
153 Citations1998Marilyn Hockenberry‐Eaton, Pamela S. Hinds +6 more
This study is the first to evaluate fatigue as a symptom in children and adolescents with cancer and will provide the foundation for developing a conceptual model for cancer-related fatigue inChildren and adolescents.
CancerQuality of life research in pediatric oncology: Research methods and barriers
129 Citations1996Andrew S. Bradlyn, A. Kim Ritchey +6 more
Developmental Medicine & Child NeurologyHealth-related quality of life in childhood epilepsy: the results of children's participation in identifying the components
98 Citations1999Gabriel M. Ronen, Peter Rosenbaum +2 more
The Canadian Journal of PsychiatryReconcilable Differences: The Marriage of Qualitative and Quantitative Methods
98 Citations1996Paula Goering, David L. Streiner
This article introduces methods and criteria and illustrates how qualitative and quantitative methods can be combined in order to improve what is learned from each.
Journal of Pediatric PsychologyQualitative Inquiry: An Overview for Pediatric Psychology
78 Citations1998Barbara H. Fiese, Nicole L. Bickham
This article provides a framework for critically evaluating qualitative research to professionals interested in pediatric psychology and concludes with guidelines for examining qualitative research and recommendations for use in Pediatrics.
Preventive MedicineDevelopment of a smoking prevention mass media program using diagnostic and formative research
76 Citations1988John K. Worden, Brian S. Flynn +8 more
The process of developing a mass media campaign to prevent smoking among adolescents is described in detail and the media campaign is being evaluated in a 5-year project to determine the additional effect of mass media over a school program alone in preventing smoking.
Health Education QuarterlyChildren's Knowledge and Beliefs about AIDS: Qualitative Data from Focus Group Interviews
42 Citations1994Marilyn J. Hoppe, Elizabeth A. Wells +3 more
Results indicate that children have a high level of awareness about AIDS and correct knowledge about the modes of human immunodeficiency virus (HIV) transmission and understand that AIDS is a serious illness that cannot be cured and know the main ways of preventing HIV infection.
Quality of Life ResearchHealth-related quality of life in Australian children with asthma: lessons for the cross-cultural use of quality of life instruments
30 Citations1998Davina French, Annemaree Carroll +1 more
Comparison with the UK data revealed that the non-asthmatic scores were higher for Australian than British children but that the scores for children with asthma did not differ between the two countries, and findings were interpreted in the context of cultural expectations of life quality.
Children s Health CareAnalyzing Drawings of Children Who are Physically Ill and Hospitalized, Using Ipsative Method
23 Citations1991William A. Rae
The ipsative method for analyzing drawings is an excellent way for a child health professional to assess and monitor a child's emotional and developmental progress during a physical illness or hospitalization.
