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Consent for genetic research in a general population: An update on the National Health and Nutrition Examination Survey experience

Genetics in MedicinePublished 1 June 2006Open access
Geraldine M. McQuillan, Qiyuan Pan, Kathryn S Porter
Citations78
SJR quartileQ1
SJR score2.68
SNIP2.38
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TL;DR

Findings demonstrate wide acceptance among survey participants for allowing storage of specimens for future studies but indicate the need to explore race/gender issues with the collection and storage of DNA for genetic research.

Abstract

Females and non-Hispanic blacks consistently had lower consent rates during the survey years when genetic studies were mentioned in the consent, but once DNA collection was discontinued these differences disappeared. These findings demonstrate wide acceptance among survey participants for allowing storage of specimens for future studies but indicate the need to explore race/gender issues with the collection and storage of DNA for genetic research.

Keywords

MedicineBiochemistry, Genetics and Molecular Biology