The Needs, Concerns and Coping of Parents of Children with Cystic Fibrosis

Examination of the perceptions parents of children with cystic fibrosis have of the impact of CF on family functioning found parents were most concerned about their child's future and making their child comfortable or happy.

Abstract

The authors of this exploratory study examined the perceptions parents of children with cystic fibrosis (CF) have of the impact of CF on family functioning. A sample of 161 mothers and fathers completed the Chronicity Impact and Coping Instrument: Parent Questionnaire (CICI:PQ), an instrument to measure parent perceptions of their concerns, needs, and coping strategies. No significant differences were noted between responses of mothers and fathers. Parents were most concerned about their child's future and making their child comfortable or happy. Over one-half of the parents wanted information about their child's condition and growth and development. Coping stragegies used most often were talking with the nurse and physician, and praying.