Chronic illness: from experience to policy

The author reveals that disability and the Persistence of the ONormalO and the impact of the Bureaucratization of Long-Term Care in North American and Chinese Societies has changed since the publication of this book in 2012.

Abstract

Preface Acknowledgments Part One 1. Sufficient Unto the Day: A Life with Multiple Sclerosis S. Kay Toombs 2. The Exceptional Family: Walking the Edge of Tragedy and Transformation Ruthanne L. Curry 3. Chronic Illness and the Dynamics of Hoping David Barnard 4. Rage and Grief: Another Look at DaxOs Case Lonnie D. Kliever 5. Whose Story Is It Anyway? Authority, Voice, and Responsibility in Narratives of Chronic Illness Sue E. Estroff Part Two 6. Beyond Respect to Recognition and Due Regard Ronald A. Carson 7. Chronic Illness and Freedom George J. Agich 8. Disability and the Persistence of the ONormalO John W. Douard 9. The Social Course of Chronic Illness: Delegitimation, Resistance, and Transformation in North American and Chinese Societies Arthur Kleinman 10. The Role of the Rules: The Impact of the Bureaucratization of Long-Term Care Muriel R. Gillick Contributors Index