Health Care Transition for Young Adults With Type 1 Diabetes: Stakeholder Engagement for Defining Optimal Outcomes
Journal of Pediatric PsychologyPublished 5 April 2017Open access
Jessica S. Pierce, Karen J. Aroian, Elizabeth D. Schifano, Amy Milkes, Tiani Schwindt, Anthony W. Gannon
Citations48
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SJR score1.05
SNIP1.12
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TL;DR
This study engaged multiple stakeholders in qualitative interviews to identify the content domain for developing a multidimensional measure of health care transition (HCT) outcomes, and the results can guide creation of an initial item pool for aMultidimensional profile of HCT outcomes.
Abstract
Objectives: Research on the transition to adult care for young adults with type 1 diabetes (T1D) emphasizes transition readiness, with less emphasis on transition outcomes. The relatively few studies that focus on outcomes use a wide variety of measures with little reliance on stakeholder engagement for measure selection. Methods: This study engaged multiple stakeholders (i.e., young adults with T1D, parents, pediatric and adult health care providers, and experts) in qualitative interviews to identify the content domain for developing a multidimensional measure of health care transition (HCT) outcomes. Results: The following constructs were identified for a planned measure of HCT outcomes: biomedical markers of T1D control; T1D knowledge/skills; navigation of a new health care system; integration of T1D into emerging adult roles; balance of parental involvement with autonomy; and "ownership" of T1D self-management. Discussion: The results can guide creation of an initial item pool for a multidimensional profile of HCT outcomes.
Keywords
MedicineHealth Professions
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