The dynamics of change: Cancer patients' preferences for information, involvement and support
Annals of OncologyPublished 1 August 1997Open access
Phyllis Butow, Marjory MacLean, Stewart M. Dunn, M.H.N. Tattersall, Michael Boyer
Citations504
SJR quartileQ1
SJR score19.07
SNIP10.48
Generate an AI Snapshot to get a quick, structured summary of this paper.
Study Snapshot
ObjectiveStudy objective
MethodsResearch methodology
PopulationPopulation studied
Sample sizeSample sizes
OutcomesStudy outcomes here
ResultsStudy results comes here
LimitationsResearch study limitations comes here
A concise AI-generated summary of the paper will appear here once you click Generate AI Snapshot.
TL;DR
Situational factors, such as change in disease status, may alter a patient's preferences for information and involvement, and it is needed to match the provision of information and support to the expressed needs of patients.
Abstract
Situational factors, such as change in disease status, may alter a patient's preferences for information and involvement. If we wish to match the provision of information and support to the expressed needs of patients, we must ask patients at each consultation what those needs are.
Keywords
MedicineHealth Professions
Annals of Internal MedicineInformation and Participation Preferences Among Cancer Patients
1,142 Citations1980Barrie R. Cassileth, ROBERT V. ZUPKIS +2 more
Most patients in each age group displayed high levels of hope, preferences for open communication about their illness, and a desire for maximum amounts of information.
Journal of Bangladesh College of Physicians and SurgeonsDoctor Patient Communication: A Review
1,070 Citations2015Tahmina Begum
This paper aims to raise awareness on the important issues involved in doctor-patient and inter-professional communication among the medical professionals.
Journal of Clinical EpidemiologyDecision making during serious illness: What role do patients really want to play?
1,009 Citations1992Lesley F. Degner, Jeffrey A. Sloan
It is suggested that the impact of being diagnosed with a life-threatening illness may influence preferences to participate, and the majority of patients and members of the public wanted their physician and family to share responsibility for decision making if they were too ill to participate.
New England Journal of MedicineGaps in Doctor-Patient Communication
1,006 Citations1969Vida Francis, Barbara M. Korsch +1 more
The extent to which patients' expectations from the medical visit were left unmet, lack of warmth in the doctor–patient relation, and failure to receive an explanation of diagnosis and cause of the child's illness were key factors in noncompliance.
Journal of Personality and Social PsychologyMonitoring and blunting: Validation of a questionnaire to assess styles of information seeking under threat.
993 Citations1987Suzanne M. Miller
The MBSS measure of coping styles appears to be a valid instrument for predicting behavioral strategies in response to both physical and psychological stressors, particularly with the monitoring dimension.
PubMedGaps in doctor-patient communication. 1. Doctor-patient interaction and patient satisfaction.
926 Citations1968Barbara M. Korsch, Ethel K. Gozzi +1 more
A number of communication barriers between pediatrician and patient9s mother were found to contribute significantly to patient dissatisfaction: notably lack of warmth and friendliness on the part of the doctor and use of medical jargon.
JAMADo Patients Want to Participate in Medical Decision Making?
759 Citations1984William Strull
Patients who preferred not to make initial therapeutic decisions did want to participate in ongoing evaluation of therapy, and clinicians underestimate patients' desire for information and discussion but overestimate Patients' desire to make decisions.
PEDIATRICSGAPS IN DOCTOR-PATIENT COMMUNICATION
749 Citations1968Barbara M. Korsch, Ethel K. Gozzi +1 more
A number of communication barriers between pediatrician and patient's mother were found to contribute significantly to patient dissatisfaction: notably lack of warmth and friendliness on the part of the doctor and use of medical jargon.
Health Education MonographsPatient Participation in the Patient-Provider Interaction: The Effects of Patient Question Asking on the Quality of Interaction, Satisfaction and Compliance
640 Citations1977Debra Roter
The experimental group patients demonstrated higher appointment-keeping ratios and were less satisifed with care received in the clinic on the day of their visit than were placebo patients, while the placebo group patient-provider interaction was characterized as mutually sympathetic.
Social Science & MedicineInformation and decision-making preferences of hospitalized adult cancer patients
493 Citations1988Christina G. Blanchard, Mark S. Labrecque +2 more
These data suggest that, although most patients prefer all information to be given to them, almost one-fourth of them preferred a more authoritarian, rather than participatory, relationship with their oncologist.
Journal of the Royal Society of MedicineCancer Patients: Their Desire for Information and Participation in Treatment Decisions
436 Citations1989Heather J. Sutherland, Hilary A. Llewellyn‐Thomas +3 more
The results of this study indicate that patients may actively seek information to satisfy an as yet unidentified aspect of psychological autonomy that does not necessarily include participation in decision making.
Annals of Internal MedicineThe Patient's Role in Clinical Decision-Making
400 Citations1980David S. Brody
The concept of mutual participation is discussed, an approach to encouraging patient participation in clinical decision-making is presented, and its theoretical advantages are considered.
Social Science & MedicineRelationship between preferences for decisional control and illness information among women with breast cancer: A quantitative and qualitative analysis
330 Citations1994Thomas F. Hack, Lesley F. Degner +1 more
Relationships between cancer patients' preferences for involvement in making treatment decisions and preferences for information about diagnosis, treatment, side effects, and prognosis are examined in 35 women with stage I and II breast cancer.
British Journal of CancerCancer patients' perceptions of their disease and its treatment
311 Citations1988WJ Mackillop, W. F Stewart +2 more
Interactions between doctor and patients were not observed directly and it was not possible to determine whether patients' inaccurate views of their illness were due to suboptimal communication or denial.
CancerCancer patient satisfaction with care
261 Citations1990John Wiggers, Kathleen O. Donovan +2 more
Most patients were satisfied with the opportunities provided to discuss their needs with doctors, the interpersonal support of doctors, and the technical competence of doctors; however, few patients were satisfaction with the provision of information concerning their disease, treatment, and symptom control and the Provision of care in the home and to family and friends.
Journal of Health and Social BehaviorIssues Underlying Prevalence of "Doctor-Shopping" Behavior
259 Citations1976Josephine M. Kasteler, Robert L Kane +2 more
Factors related to tendency to shop for doctors in both upper-and lower-income groups were a lack of confidence in doctors' competence, unwillingness of doctors to spend time talking with patients, hostile feelings toward doctors, high cost of services, inconvenience of location and hours, and unfavorable attitudes toward doctors' personal qualities.
Annals of OncologyPatient participation in the cancer consultation: Evaluation of a question prompt sheet
215 Citations1994Phyllis Butow, Stewart M. Dunn +2 more
A question prompt sheet has a limited but important effect on patient question asking behaviour in the cancer consultation.
BMJFully informed consent can be needlessly cruel.
179 Citations1993Jeffrey Tobias, R L Souhami
Low serum IGF-1 levels in the metabolic derangement of diabetes.
Culture Medicine and PsychiatryEmbodying illness, embodying cancer
157 Citations1990Deborah R. Gordon
It is the social reality that is dominant here, such that informing a patient of cancer can be tantamount to social death, and nondisclosure is a major mechanism for keeping the “condemned” in this social world, and keeping death, decay, and suffering in the ‘other.
Journal of Clinical OncologyGeneral information tapes inhibit recall of the cancer consultation.
155 Citations1993Stewart M. Dunn, Phyllis Butow +5 more
It is concluded that individual audiotapes have a limited potential to increase recall of information from the oncology consultation and general information tapes about cancer appear to inhibit recall actively.
Social Science & MedicineSatisfaction with communication, medical knowledge, and coping style in patients with metastatic cancer
129 Citations1991Andrew Steptoe, Ian Sutcliffe +2 more
It is argued that satisfaction with communication in medical settings is not a simple function of communication skills and the provision of adequately structured information, but that patients' tendencies to cope with stress by seeking out or avoiding information need to be taken into account.
Health CommunicationPatient Power in Doctor-Patient Communication: What Do We Know?
129 Citations1990Analee E. Beisecker
The effects of sociodemographic factors, attitudes, and situational variables on patients' attempts to influence doctor-patient encounters with emphasis on patient information-seeking activities, patient assertiveness, and patient input in medical decision making are documented.
Psychological ReportsLocus of Control and Adjustment to Cancer
121 Citations1990Maggie Watson, Steven Greer +2 more
The English form of the Cancer Locus of Control Scale provides a valid measure of perceptions of control of cancer patients and is a useful method of assessing these important psychological responses.
Social Science & MedicineThe significance of the doctor-patient relationship in coping with cancer
120 Citations1984Eric Molleman, Pieter J. Krabbendam +4 more
Four ways of coping with uncertainty and anxiety can be distinguished, of which the use of self-instruction means was most common and expert help proved to be important for reduction of uncertainty.
Journal of Clinical OncologyDisclosure of information to adult cancer patients: issues and update.
92 Citations1984Robert J. Goldberg
Changes in the attitudes of physicians over the last several decades are reviewed, the problems that confront the clinician in the process of disclosure are elaborated on, and the available data concerning the documented impact on the patient from receiving or not receiving information is reviewed.
CancerInformed consent the whole truth for patients?
75 Citations1993John D. Lantos
Two misconceptions about informed consent concern the difference between the legal and moral justification for it, and the rationale for more rigorous consent for research than for “standard” therapy.
Journal of Psychosocial OncologyOncologists' Perceptions of the Effects of Cancer Patients' Companions on Physician-Patient Interactions
61 Citations1994Analee E. Beisecker, William Moore
The physicians perceived that companions and patients often had different agendas and noted differences in the companions' behaviors according to their gender and whether they lived in rural or urban areas.
Cancer NursingA comparison of American and Egyptian cancer patients?? attitudes and unmet needs
56 Citations1993Nagia S. Ali, Hoda Z. Khalil +1 more
Comparisons and differences in statements made by American and Egyptian cancer patients who expressed their attitudes toward cancer and reported their unmet needs imply the need for further research to determine if attitudes and un met needs affect coping effectiveness and quality of life among cancer patients.
DigitalGeorgetown (Georgetown University Library)Whose Standards: Consumer and Professional Standards in Health Care
44 Citations1992Charlotte Williamson
Interests and ideologies consumerists consumerists' and consumers' standards autonomy and therapeutic benefits respect support information control choice decision making standards and specifications conclusion.
HeartDo patients want to be informed? A study of consent for cardiac catheterisation.
19 Citations1984Andrew Fraser
Patients were asked to recall what they had been told before they gave consent for cardiac catheterisation to be performed and most patients did not know about the risks, and two thirds would not have wanted to be told about them.