Intervention development for enhanced lay palliative caregiver support - the use of focus groups
European Journal of Cancer CarePublished 1 December 2002
Peter Hudson, Sanchia Aranda, Nancy E. McMurray
Citations91
SJR quartileQ2
SJR score0.74
SNIP0.88
Generate an AI Snapshot to get a quick, structured summary of this paper.
Study Snapshot
ObjectiveStudy objective
MethodsResearch methodology
PopulationPopulation studied
Sample sizeSample sizes
OutcomesStudy outcomes here
ResultsStudy results comes here
LimitationsResearch study limitations comes here
A concise AI-generated summary of the paper will appear here once you click Generate AI Snapshot.
TL;DR
The research provided the essential ingredients for the future development of a new intervention aimed at augmenting home lay palliative caregiver guidance and support.
Abstract
Caring for a family member or friend dying of cancer can be extremely stressful. Past research identified that lay caregivers frequently report unmet needs related to guidance and support to assist them to provide care. This study sought to extend prior needs-based research towards the development of a new nursing intervention focused on the guidance and support provided to persons caring for a relative or friend dying of cancer. Focus groups were conducted with current lay caregivers, bereaved lay caregivers and palliative care nurses. The findings endorsed the applicability of previous caregiver need research to the Australian context. Participants revealed that caregivers were commonly unprepared for their role and desired much more guidance and support from health professionals. Importantly, the research provided the essential ingredients for the future development of a new intervention aimed at augmenting home lay palliative caregiver guidance and support.
Keywords
PsychologySocial SciencesMedicine
Social Science & MedicinePositive psychological states and coping with severe stress
1,807 Citations1997Susan Folkman
Coping processes that are associated with positive psychologicalStates in the context of intense distress are described and the theoretical implications of positive psychological states in the coping process are discussed.
The Focus Group Guidebook
1,658 Citations1998David Morgan
Thoroughly covering all the information to help you start your focus group project, this guidebook is appropriate for anybody beginning a focus group, as well as managers or clients who will be using focus groups.
Focus Group Interviews in Education and Psychology
1,448 Citations1996Sharon Vaughn, Jeanne Shay Schumm +1 more
Journal of GerontologyMeasuring Caregiving Appraisal
734 Citations1989M. P. Lawton, Morton H. Kleban +3 more
Caregivers of disabled older people were studied in terms of their appraisal of the caregiving process, and a conceptual approach based on stress theory suggested that such appraisal was broader than the traditional term, "caregiving burden".
Moderating Focus Groups
730 Citations1998Richard A. Krueger
The GerontologistGain in the Caregiving Experience: Where Are We? What Next?
661 Citations1997B. Josea Kramer
This critical review of 29 studies published through 1996 on the gain experienced among informal caregivers of older adults identifies 13 conceptual and methodological observations and proposes a conceptual framework to bring some consistency to the ways in which future research on positive aspects of caregiving proceeds.
Cancer NursingCaregiving demands and appraisal of stress among family caregivers
310 Citations1989Marilyn T. Oberst, Suzie Thomas +2 more
There was a strong positive correlation between caregiver load and the harm/loss and threat appraisals and a need for frequent reassessment of demands on family caregivers throughout the course of treatment.
Qualitative Health ResearchComment: Concerns in the Analysis of Focus Group Data
224 Citations1995Martha Ann Carey
Cancer NursingHome Caregivers of the Person With Advanced Cancer
161 Citations2001Sanchia Aranda, Karla Hayman‐White
The study found that family caregivers are significantly involved in symptom management, and that they take on almost total responsibility for routine household tasks, which supports the applicability of the vast international literature on caregiver issues for the Australian setting.
Cancer NursingA description of the needs of noninstitutionalized cancer patients and their primary care givers
112 Citations1989Anita Wingate, Nancy R. Lackey
Findings revealed that patient needs were represented by six categories and caregivers' needs by seven categories, and the largest number of needs were in the psychological needs category.
Palliative MedicineSupport needs in the last year of life: patient and carer dilemmas
110 Citations1997Gunn Grande, Chris Todd +1 more
An increase in services is necessary but not sufficient to meet patients' needs fully, and services should be introduced in ways that help patients to preserve independence, dignity and familiar aspects of life.
Journal of Clinical NursingA qualitative analysis of the information needs of informal carers of terminally ill cancer patients
105 Citations1999KARNE E ROSE
Qualitative data analysis, drawing on methods of literary criticism, revealed that information was a key area in carers' experience and the importance of the nurse's role as a sensitive mediator of information is considered.
Cancer NursingFamily coping: Issues and challenges for cancer nursing
99 Citations1999Patsy Yates
It is suggested that enormous scope exists for improving nurses' contribution to care for families of people with cancer and specific recommendations for achieving such improvements include a critical review of the constraints that exist on efforts to Care for families and the development of approaches to care that appreciate the interconnectedness of family responses and the considerable needs of family members for emotional and practical support.
Journal of Family NursingA Description of a Psychoeducational Intervention for Family Caregivers of Cancer Patients
95 Citations1998Frances K. Barg, Jeannie V. Pasacreta +5 more
A 6-hour psychoeducational Family Caregiver Cancer Education Program (FCCEP) for cancer caregivers that addresses symptom management, psychosocial support, and resource identification is implemented.
Cancer NursingQuality of Life for Long-Term Survivors of Cancer
80 Citations2001Leli W. Pedro
The HRQL of long-term survivors of cancer may increase with interventions such as both survivor-and nurse-led support groups aimed at supporting and improving self-esteem, and education to anticipate social support losses may further enhance HRQL.
Cancer NursingInvolvement of relatives in the care of the dying in different care cultures: Involvement in the dark or in the light?
80 Citations1998Birgitta Andershed, Britt‐Marie Ternestedt
It seems that the relatives' sense of coherence was an important factor enabling them to be involved in the light, and humanistic care can constitute a buffer, thereby increasing the possibilities for relatives to be involvement in the dark.
PubMedFamilies' awareness of and response to dying.
53 Citations1999Patsy Yates, Kathleen M. Stetz
Developing an awareness of dying is a gradual process for family caregivers that may include assisting family caregivers to maintain hope, sustain social relationships, and make preparations for the death.
Nurse ResearcherFocus group interviews as a methodology
39 Citations1998P. C. Jackson
Focus groups are a form of group interview used widely in social science research and have also been applied in a number of areas of healthcare study, particularly in health promotion and consumer satisfaction.
Cancer NursingExploration of factors related to direct care and outcomes of caregiving Caregivers of terminally ill older persons
32 Citations1992Ch ing-Tzu Yang, Jane Marie Kirschling
Investigation of factors related to the amount of direct care and outcomes of caregiving experienced by family members of terminally ill older persons using secondary analysis found Behavioral problem tasks were least frequently provided but were reported as the most difficult, tiring, upsetting, and hardest to provide.
PubMedFocus group interviews as a tool for psychiatric nursing research.
28 Citations1996Brenda Happell
The process of focus group interviews is illustrated by the author's own experience with this method, and the potential advantages and disadvantages of focus groups as a research method are outlined.
The Family as a Unit of Treatment
6 Citations1997Linda J. Kristjanson