The lived experience of freezing in people with Parkinson's: an interpretive phenomenological approach

The findings of this small scale study highlight the need for further research into the lived experience of people with Parkinson's where there is currently limited understanding of the experience of freezing.

Abstract

Background/Aims: The aim of this study was to explore the experience of freezing for people with Parkinson's where there is currently limited understanding. Methods: An interpretive phenomenological approach was used. Semi-structured interviews were undertaken with a purposive sample of 6 participants from the UK in 2009. The first interview was undertaken in person and the next five by telephone. The interviews were transcribed verbatim and thematically analysed. Findings: The experience, triggers, and methods used to overcome or cope with freezing were individual and varied. Freezing was experienced as an entity, which was unpredictable and uncontrollable. Its impact was a heightened physical awareness, and a feeling of separation and alienation from one's body. This affected the person's emotions and heightened the link between their emotional and physical self. Conclusions: The findings of this small scale study highlight the need for further research into the lived experience of people with Parkinson's. They have provided a starting point for generating greater understanding of freezing, by those who experience it. Further work may be needed to explore and broaden this concept. The implementation of coping and supportive strategies that emphasize the emotional consequences, impact on daily life, and relationships may be warranted.