Facilitating narrative medical discussions of type 1 diabetes with computer visualizations and photography
Patient Education and CounselingPublished 22 July 2006
Brian Smith, Jeana Frost, Meltem Albayrak, Rajneesh Sudhakar
Citations27
SJR quartileQ1
SJR score1.24
SNIP1.37
Generate an AI Snapshot to get a quick, structured summary of this paper.
Study Snapshot
ObjectiveStudy objective
MethodsResearch methodology
PopulationPopulation studied
Sample sizeSample sizes
OutcomesStudy outcomes here
ResultsStudy results comes here
LimitationsResearch study limitations comes here
A concise AI-generated summary of the paper will appear here once you click Generate AI Snapshot.
TL;DR
This intervention describes an intervention where individuals with type 1 diabetes photograph health-related behaviors and these images are displayed in computer visualizations and used during patient-physician interviews, suggesting the range of difficulties associated with diabetes self-management.
Abstract
We suggest that this and similar interventions could be used as an occasional diagnostic to help patients articulate stories of their health-related practices. Annotated archives of photographs and glucose data may also be useful tools for sharing diabetes experiences with newly diagnosed patients.
Keywords
MedicineHealth Professions
New England Journal of MedicineThe Effect of Intensive Treatment of Diabetes on the Development and Progression of Long-Term Complications in Insulin-Dependent Diabetes Mellitus
24,537 Citations1993David M. Nathan
Intensive therapy effectively delays the onset and slows the progression of diabetic retinopathy, nephropathy, and neuropathy in patients with IDDM.
The LancetIntensive blood-glucose control with sulphonylureas or insulin compared with conventional treatment and risk of complications in patients with type 2 diabetes (UKPDS 33)
20,069 Citations1998
The effects of intensive blood-glucose control with either sulphonylurea or insulin and conventional treatment on the risk of microvascular and macrovascular complications in patients with type 2 diabetes in a randomised controlled trial were compared.
New England Journal of MedicineReduction in the Incidence of Type 2 Diabetes with Lifestyle Intervention or Metformin
19,026 Citations2002Diabetes Prevention Program Research Group
Lifestyle changes and treatment with metformin both reduced the incidence of diabetes in persons at high risk and the lifestyle intervention was more effective than meetformin.
ScienceThe Need for a New Medical Model: A Challenge for Biomedicine
12,233 Citations1977George L. Engel
Journal of the Learning SciencesDesign Experiments: Theoretical and Methodological Challenges in Creating Complex Interventions in Classroom Settings
3,956 Citations1992Ann L. Brown
The lion's share of my current research program is devoted to the study of learning in the blooming, buzzing confusion of inner-city classrooms, and central to the enterprise is that the classroom must function smoothly as a learning environment before the authors can study anything other than the myriad possible ways that things can go wrong.
Diabetes CareThe Prevalence of Comorbid Depression in Adults With Diabetes
3,923 Citations2001Ryan J. Anderson, Kenneth E. Freedland +2 more
The presence of diabetes doubles the odds of comorbid depression, and the prevalence of depression was significantly higher in diabetic women than in diabetic men, and in uncontrolled studies than in controlled studies.
Educational ResearcherDesign-Based Research: An Emerging Paradigm for Educational Inquiry
2,563 Citations2003The Design-Based Research Collective
JAMANarrative Medicine
2,111 Citations2001Rita Charon
By bridging the divides that separate physicians from patients, themselves, colleagues, and society, narrative medicine offers fresh opportunities for respectful, empathic, and nourishing medical care.
Journal of the Learning SciencesDesign Research: Theoretical and Methodological Issues
1,913 Citations2004Allan Collins, Diana Joseph +1 more
Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems
1,226 Citations2021
Toward a Design Science of Education
1,086 Citations1992Allan Collins
BBN Inc. is part of the new Center for Technology in Education located at Bank Street College in New York and a major goal is to synthesize research on technological innovation, to develop a methodology for carrying out design experiments, and to study different ways of using technology in classrooms and schools.
BMJWhy study narrative?
724 Citations1999Trisha Greenhalgh, Brian Hurwitz
Both Pooh Bear, trudging hopefully through the snow, and Piglet, mysteriously absent from his usual place beside the fire, are already characters in the story rather than merely objects in the tale.
Patient Education and CounselingBridging the gap.
684 Citations2000Jozien M. Bensing
In modern medicine both paradigms are highly relevant, but yet seem to belong to different worlds, so the challenge for the near future is to bring these separate worlds together.
JAMAA Study of Patient Clues and Physician Responses in Primary Care and Surgical Settings
663 Citations2000Wendy Levinson
It is suggested that physicians in both primary care and surgery can improve their ability to respond to patient clues even in the context of their busy clinical practices.
Journal of General Internal MedicineTime and the patient-physician relationship
592 Citations1999David C. Dugdale, Ronald M. Epstein +1 more
The effects of limiting time on the patient-doctor relationship is examined, including the effects that are attributable to managed care, and recommendations for teaching medical students and residents skills that will help establish and maintain their patient- doctor relationships in the face of time pressure.
LifeLines: visualizing personal histories
586 Citations1996Catherine Plaisant, Brett Milash +3 more
The paper describes the use of LifeLines for youth records of the Maryland Department of Juvenile Justice and also for medical records, and Techniques to deal with complex records are reviewed and issues of a standard personal record format are discussed.
BMJPatients' unvoiced agendas in general practice consultations: qualitative study
580 Citations2000Christine A. Barry
Investigation of patients' agendas before consultation and the effects of unvoiced agendas on outcomes suggests that when patients and their needs are more fully articulated in the consultation better health care may be effected.
BMJNarrative based medicine: Narrative based medicine in an evidence based world
503 Citations1999Trisha Greenhalgh
The dissonance between the ‘science’ of objective measurement and the “art” of clinical proficiency and judgment is explored and attempts to integrate these different perspectives on clinical method.
Qualitative Health ResearchUnderstanding Illness: Using Drawings as a Research Method
490 Citations2004Marilys Guillemin
The author examines the use of drawings as a research tool used as an adjunct to other social research methods and argues that drawings offer a rich and insightful research method to explore how people make sense of their world.
Human-Computer InteractionVisual Information as a Conversational Resource in Collaborative Physical Tasks
386 Citations2003Robert E. Kraut, Susan R. Fussell +1 more
The role of visual information in maintaining task awareness and in achieving mutual understanding in conversation is focused on, as well as the effects of this visual information on performance and on conversational strategies.
Journal of the American Dietetic AssociationComparison of digital photography to weighed and visual estimation of portion sizes
354 Citations2003Donald A. Williamson, H. Raymond Allen +4 more
Findings support the validity of the digital photography method for measuring portion sizes, which may be most useful for measuring food intake in settings that allow for the direct observation of food selections and plate waste but require minimum disruption of the eating environment, and allow unhurried estimates of portion sizes.
Choice Reviews OnlineThe politics of medical encounters: how patients and doctors deal with social problems
311 Citations1992
Diabetes CareChanges in Diabetes Self-Care Behaviors Make a Difference in Glycemic Control
308 Citations2003Helen Jones, Lynn Edwards +7 more
This study demonstrates that this intervention has the potential of positively impacting the health of broad populations of individuals with diabetes, not just the minority who are ready for change.
Qualitative Health ResearchImages of Recovery: A Photo-Elicitation Study on the Hospital Ward
307 Citations2003Alan Radley, Diane Taylor
The authors attempted to discover the part the physical setting of the ward plays in patients’ recovery by asking patients to take photographs of their ward, its spaces and objects, and then interviewing them about these images in hospital and subsequently in their homes.
Patient Education and CounselingProvider–patient interaction in diabetes care: effects on patient self-care and outcomes
261 Citations2002Henk A. van Dam, Frans van der Horst +3 more
Focusing on patient behaviour--directly enhancing patient participation i.e. by assistant-guided patient preparation for visits to doctors, empowering group education, group consultations, or automated telephone management--is more effective than focusing on provider behaviour to change their consulting style into a more patient-centred one.
Diabetes SpectrumStress and Diabetes: A Review of the Links
252 Citations2005Cathy E. Lloyd, Julie Smith +1 more
Evidence suggests that stressful experiences might affect diabetes, in terms of both its onset and its exacerbation, and the implications for clinical practice and care are discussed.
New Directions in Educational Technology
244 Citations1992Eileen Scanlon, Tim O’Shea
This book is based on the workshop that kickstarted the NATO Science Committee Special Programme on Advanced Educational Technology and covers all the major themes in the area ranging from fundamental theoreticalwork to empirical studies of state-of-the-art technological innovations.
Diabetes CareBehavioral science in diabetes. Contributions and opportunities.
222 Citations1999Russell E. Glasgow, Edwin B. Fisher +6 more
Social Science & MedicineExplanatory models of diabetes: Patient practitioner variation
211 Citations1994Marlene Z. Cohen, Toni Tripp‐Reimer +3 more
The Spearman correlation coefficient showed a positive but non-significant association of explanatory model congruence between professionals and patients with normal glycosylated hemoglobin levels.
The British Journal of PsychiatryThe case against ‘the evidence’: A different perspective on evidence-based medicine
199 Citations2002D. D. R. Williams, Jane Garner
Too great an emphasis on evidence-based medicine oversimplifies the complex and interpersonal nature of clinical care and a degree of professional consensus is necessary.
Archives of Internal Medicine"Building" a History Rather Than "Taking" One
197 Citations2003Paul Haidet, Debora A. Paterniti
A framework of skills and attitudes that can act as a foundation for future work in educating practitioners and researching the medical interview is suggested.
Diabetes CarePsychological and Social Correlates of Glycemic Control
195 Citations1984Roger S. Mazze, David Lucido +1 more
Change in glycemic control was found to account for up to 20% of the between-patient variability for these psychosocial parameters for personality, anxiety, depression, and quality of life.
Diabetes CarePatient Perspective on Factors Contributing to Nonadherence to Diabetes Regimen
185 Citations1986Dennis V. Ary, Deborah J. Toobert +2 more
International Journal of Human-Computer StudiesRethinking video as a technology for interpersonal communications: theory and design implications
185 Citations1995Steve Whittaker
It is suggested that research move away from an exclusive focus on non-verbal communication, and begin to investigate these other uses of real-time video, as well as identify design implications and outstanding research questions derived from current findings.
Diabetes CareReport of the Health Care Delivery Work Group
175 Citations2001Russell E. Glasgow, Roland G. Hiss +6 more
The quality of care provided to the vast majority of diabetic patients is problematic, but this is principally not the fault of either individual patients or health care professionals, and it is a systems issue emanating from the acute illness model of care.
Diabetes CarePersonal Models of Diabetes in Relation to Self-Care, Well-Being, and Glycemic Control
151 Citations2001Timothy Skinner, Sarah E. Hampson
This study provides further support for the role of personal models of illness in determining responses to illness as parents, clinicians, educators, and interventionists should consider these adolescents' beliefs about their diabetes and its treatment as key factors influencing self-care, emotional well-being.
Diabetes CareAssociation between stress and glycemic control in adults with type 1 (insulin-dependent) diabetes.
128 Citations1999Cathy E. Lloyd, Philip Dyer +4 more
The study has shown that recent severe stressors are associated with poorer glycemic control and learning to recognize and cope with stressors may help individuals with diabetes maintain good gly glucose control and improve overall quality of life.
Photographing the Self: Methods for Observing Personal Orientations
124 Citations1990Robert C. Ziller
BMJNarrative based medicine: Stories we hear and stories we tell: analysing talk in clinical practice
109 Citations1999Glyn Elwyn, Rhodri Gwyn
By deconstructing a piece of dialogue in this paper, the value of learning to listen carefully to the stories the authors hear is illustrated, and the tools normally used are insufficient to examine the layers of meaning that lie within the text of exchanges.
Patient Education and CounselingPsychosocial and quality of life correlates of glycemic control during intensive treatment of type 1 diabetes
101 Citations2001Katie Weinger, Alan M. Jacobson
Emotional and attitudinal barriers to improved glycemic control (HbA1c) during intensive diabetes treatment may initially act as motivators to improve glycemia but can later become barriers to that goal.
Journal of the American Dietetic AssociationSituational obstacles to dietary adherence for adults with diabetes
94 Citations1994David G. Schlundt, Melinda R Rea +2 more
A taxonomy of everyday situations that create obstacles for adherence to dietary management in patients with diabetes is developed to assess an individual's ability to cope with this array of obstacles to dietary adherence so treatment can be individualized.
Communications of the ACMAn international collaboratory based on virtual patient records
88 Citations1997David G. Kilman, D. W. Forslund
Computer Supported Cooperative Work (CSCW)Video-as-data: Technical and social aspects of a collaborative multimedia application
78 Citations1994Bonnie Nardi, Allan Kuchinsky +3 more
It is argued that video can be useful as more than just pictures of people talking to one another;Video can be a rich tool to enable analysis and problem solving.
The Diabetes EducatorThe Lived Experience of Adolescent Females With Type 1 Diabetes
77 Citations2004Jane K. Dickinson, Maureen M. O’Reilly
Making visible the experience of adolescent females living with type 1 diabetes has implications for practice, education, and research in diabetes education.
PEDIATRICSAsthma in Life Context: Video Intervention/Prevention Assessment (VIA)
71 Citations2000Michael Rich, Steven Lamola +2 more
VIA visual narratives extended a comprehensive, standard of care medical history, yielding a more complete and accurate understanding of exacerbating environmental exposures and inappropriate medication usage of children and adolescents with asthma.
Behaviour and Information TechnologyViewing personal history records: A comparison of tabular format and graphical presentation using LifeLines
56 Citations1998Diane Lindwarm Alonso, Anne C. Rose +2 more
Results suggest that overall the LifeLines representation led to much faster response times, primarily for questions which involved interval comparisons and making intercategorical connections.
American Journal of Health BehaviorVisual Illness Narratives of Asthma: Explanatory Models and Health-related Behavior
54 Citations2002Michael Rich, Jennifer Patashnick +1 more
Understanding and responding to explanatory models of asthma management may be more important than education to improve asthma-related behaviors and adherence to medical plans.
Patient Education and CounselingTraining general practitioners in behavior change counseling to improve asthma medication adherence
50 Citations2005Sandra Broers, Ellen M.A. Smets +4 more
Positive effects provide some hope that the training positively influenced the GP's communication behavior, and further data on physician behavior and patient outcomes justify implementation of the training.
Patient Education and CounselingUsing expert patients’ narratives as an educational resource
48 Citations2004Teresa Swift, Paul Dieppe
The topic of patient participation in health care is examined and the concept of patient expertise is drawn on to produce a new kind of information booklet for chronic arthritis patients that is patient-generated and contains the illness narratives of patients with three kinds of arthritis.
Qualitative Health ResearchDiabetes: The Layperson’s Theories of Causality
47 Citations2002Francisco Javier Mercado-Martínez, Igor Martín Ramos Herrera
The authors examine laypersons’perspectives of illness: the content of causal explanations of diabetes and differences in explanations according to gender and how lay theories can be useful for the reorganization of health services.
Visualizing health
46 Citations2003Jeana Frost, Brian Smith
A new approach to diabetes education courses and visualization software that allows photographs of behavior to be synchronized with glucose data are discussed, which are designed to help diabetics reflect on their health practices, and to use personal imagery as data to explain their conditions.
Issues in Comprehensive Pediatric NursingThe use of Photography to Explore the Meaning of Health Among Adolescents with Cancer
43 Citations1993Kathleen Hanna, Phyllis M. Jacobs
The meaning of health held by these adolescents may have implications for influencing their adherence to cancer treatment regimens as well as other health behaviors that promote or risk their health.
Military MedicineChanges in Food Intake and Body Weight Associated with Basic Combat Training
40 Citations2002Donald A. Williamson, Pamela Davis Martin +5 more
The findings suggest that the overall effect of BCT was a trend toward improvement of healthy eating and healthy body weight.
IBM Systems JournalJustifying imagery: Multimedia support for learning through explanation
34 Citations2000Brian Smith, Erik Blankinship
A framework for students to collaborate around photographs and video, collaboration that leads to inquiry and the development of explanatory models are described, to illustrate how students can begin to develop predictive theories from image data.
Journal of Pediatric NursingExploring the concept of health among adolescents with diabetes using photography
32 Citations1995Kathleen Hanna, Phyllis M. Jacobs +1 more
The concept of health among adolescents with diabetes was described as energy, positive feelings, absence of illness, strength, activity, fitness, mental ability, and relationships, and there were also descriptions of what one does to be healthy.
PubMedA photographic method of diet evaluation.
32 Citations1983P C Elwood, G. L. H. Bird
A photographic method of diet assessment is described, where the subject is issued with a camera and a food record book and asked to photograph all meals and record the number of the photograph and details which will not show in photographs such as the method of cooking, the use of sugar in drinks, etc.
Communications of the ACMSeven work plans for year-2000 upgrade projects
25 Citations1997Dick Lefkon
A project plan—subject to ongoing revision—will likely succeed if prepared by a senior practitioner who has already done Y2K twice before, or based on a unified approach gleaned from at least three different detailed sources.
JAMAThe Politics of Medical Encounters: How Patients and Doctors Deal With Social Problems
19 Citations1991Jeffrey Michael Clair
Physician/biologist Howard Waitzkin alerts us to the prevalence of social problems within clinical settings and encounters and demonstrates that when patients approach a physician for help, they re-present a social context along with their physical problem(s).