Consumer Empowerment in Health Care Amid the Internet and Social Media
Seminars in Oncology NursingPublished 25 July 2011
William B. Lober, Jan Flowers
Citations127
SJR quartileQ2
SJR score0.65
SNIP0.77
Generate an AI Snapshot to get a quick, structured summary of this paper.
Study Snapshot
ObjectiveStudy objective
MethodsResearch methodology
PopulationPopulation studied
Sample sizeSample sizes
OutcomesStudy outcomes here
ResultsStudy results comes here
LimitationsResearch study limitations comes here
A concise AI-generated summary of the paper will appear here once you click Generate AI Snapshot.
TL;DR
Social trends are visible in the integration of information and communication technologies into health care, in both searching for and sharing information on the Internet, in the use of social media to create new types of interactions with family, providers, and peers.
Abstract
Changes in both patients and technology will impact oncology nursing practice as new, patient-centered, interactions emerge.
Keywords
Social SciencesHealth Professions
BMJCrossing the Quality Chasm: A New Health System for the 21st Century
10,744 Citations2001Alexi Baker
Analyzing health care organizations as complex systems, Crossing the Quality Chasm also documents the causes of the quality gap, identifies current practices that impede quality care, and explores how systems approaches can be used to implement change.
FigshareTable S1 - Pandemics in the Age of Twitter: Content Analysis of Tweets during the 2009 H1N1 Outbreak
1,633 Citations2015Chee Hong Chew, Günther Eysenbach
Journal of Medical Internet ResearchMedicine 2.0: Social Networking, Collaboration, Participation, Apomediation, and Openness
1,132 Citations2008Günther Eysenbach
In a very significant development for eHealth, a broad adoption of Web 2.0 technologies and approaches coincides with the more recent emergence of Personal Health Application Platforms and Personally Controlled Health Records such as Google Health, Microsoft HealthVault, and Dossia.
Journal of Medical Internet ResearchSocial Media Use in the United States: Implications for Health Communication
1,095 Citations2009Wen‐Ying Sylvia Chou, Yvonne Hunt +3 more
Recent growth of social media is not uniformly distributed across age groups; therefore, health communication programs utilizing social media must first consider the age of the targeted population to help ensure that messages reach the intended audience.
BMJTowards a global definition of patient centred care
1,079 Citations2001Moira Stewart
Strong agreement exists between the definition of patient centredness that arises empirically from this observational study of patients in the United Kingdom and another definition arising from reflections on practice in South Africa and Canada, suggesting an international definition ofpatient centred medicine.
BMJPreferences of patients for patient centred approach to consultation in primary care: observational study
777 Citations2001Paul Little, Hazel Everitt +6 more
Patients in primary care strongly want a patient centred approach, with communication, partnership, and health promotion—those vulnerable either psychosocially or because they are feeling unwell should be sensitive to patients who have a strong preference for patient centre.
World Medical & Health PolicyVolunteered Geographic Information and Crowdsourcing Disaster Relief: A Case Study of the Haitian Earthquake
732 Citations2010Matthew Zook, Mark Graham +2 more
National Academies Press eBooksCancer Care for the Whole Patient
705 Citations2008Institute of Medicine
JAMARating Health Information on the Internet
702 Citations1998Alex Jadad, Anna R. Gagliardi
To identify instruments used to rate Web sites providing health information on the Internet, rate criteria used by them, establish the degree of validation of the instruments, and provide future directions for research in this area, 47 rating instruments were identified.
Journal for Healthcare QualityThrough the Patientʼs Eyes: Understanding and Promoting Patient-Centered Care
560 Citations1997Margaret Gerteis, Susan Edgman‐Levitan +2 more
This book discusses culture, leadership, and service in the Patient-Centered Hospital, and the Doctor's Involvement in Care from the Patient's Perspective.
Journal of Medical Internet ResearchSocial Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data
550 Citations2008Jeana Frost, Michael P. Massagli
This project suggests how patients who choose to explicitly share health data within a community may benefit from the process, helping them engage in dialogues that may inform disease self-management.
Dermatologic ClinicsSocial Internet Sites as a Source of Public Health Information
522 Citations2009Karl Vance, William A. Howe +1 more
Dermatologists and other health care providers should recognize the importance of social media websites and their potential usefulness for disseminating health information.
PubMedGuidelines for medical and health information sites on the internet: principles governing AMA web sites. American Medical Association.
468 Citations2000Margaret A. Winker, Annette Flanagin +6 more
Journal of Medical Internet ResearchSeeking Support on Facebook: A Content Analysis of Breast Cancer Groups
452 Citations2011Jacqueline L. Bender, M. Carolina Jimenez +1 more
Facebook groups have become a popular tool for awareness-raising, fundraising, and support-seeking related to breast cancer attracting over one million users, and further research is warranted to explore the implications of social network sites as a health resource across various health conditions, cultures, ages, and socioeconomic groups.
Journal of Clinical OncologyEnhancing Patient-Provider Communication With the Electronic Self-Report Assessment for Cancer: A Randomized Trial
372 Citations2011Donna L. Berry, Brent A. Blumenstein +8 more
The ESRA-C is the first electronic self-report application to increase discussion of SQLIs in a US randomized clinical trial.
Journal of Medical Internet ResearchCancer Survivorship in the Age of YouTube and Social Media: A Narrative Analysis
227 Citations2011Wen‐Ying Sylvia Chou, Yvonne Hunt +2 more
The analytic results of this descriptive study point to the common characteristics of authentic cancer survivorship stories online, which may inform development of narrative-based communication, particularly in maintaining authenticity and emotional engagement.
Communications of the ACMPersonal health information management
213 Citations2006Wanda Pratt, Kenton T. Unruh +2 more
This data helps people manage their lives and actively participate in their own health care by integrating personal health information into their health care.
ResuscitationYouTube as a source of information on cardiopulmonary resuscitation
192 Citations2010Karthik Murugiah, Ajay Vallakati +3 more
YouTube may have a potential role in video-assisted learning of CPR and as source of information for CPR in emergencies and content by trusted sources should be posted to provide accurate and easily accessible information about CPR.
PubMedBarriers to the use of a personal health record by an elderly population.
182 Citations2006William B. Lober, Brenda K. Zierler +5 more
This work studied PHR use by an elderly and disabled population and described barriers encountered by patients, including access, cognitive, physical, or literacy barriers.
Current HIV ResearchRoutine Collection of Patient-Reported Outcomes in an HIV Clinic Setting:The First 100 Patients
154 Citations2006Heidi M. Crane, William B. Lober +5 more
Collection of PROs using touch-screen-based, internet technology was feasible in a busy HIV clinic but a high prevalence of body morphology abnormalities, depression, and poor adherence was found.
PEDIATRICSThe Internet as a Source for Current Patient Information
154 Citations1998H. Juhling McClung, Robert Murray +1 more
Recommendations for the treatment of acute diarrhea show a low percentage of concurrence with the AAP guidelines, and major medical institutions, schools, and hospitals need to devise ways to carefully monitor and establish quality control of what is being distributed from their home pages.
Psycho-OncologyDepression screening using the Patient Health Questionnaire‐9 administered on a touch screen computer
142 Citations2008Jesse R. Fann, Donna L. Berry +6 more
Evaluated the feasibility of touch screen depression screening in cancer patients using the Patient Health Questionnaire‐9, the construct validity of the PHQ‐9 is evaluated, and the prevalence and severity of depression using this screening modality.
Journal of Consumer PolicyThe United Nations guidelines for consumer protection
129 Citations1987David Harland
ScienceReestablishing the Researcher-Patient Compact
112 Citations2007Isaac S. Kohane, Kenneth D. Mandl +4 more
Clinical Infectious DiseasesRoutine, Self‐Administered, Touch‐Screen, Computer‐Based Suicidal Ideation Assessment Linked to Automated Response Team Notification in an HIV Primary Care Setting
101 Citations2010Sarah T. Lawrence, James H. Willig +13 more
The use of novel technologies to incorporate routine self-reported screening for suicidal ideation and other health domains allows for timely detection and intervention for this life-threatening condition.
Choice Reviews OnlineHistory and health policy in the United States: putting the past back in
85 Citations2007
International Journal of Technology Assessment in Health CareSpeaking Up for Ourselves:<i>The Evolution of Consumer Advocacy in Health Care</i>
80 Citations1998Hilda Bastian
The philosophies and rationales behind this trend in consumer involvement in health care internationally are addressed and the history and development of consumer advocacy in health health care is traced.
Seminars in Oncology NursingElectronic Health Records and Personal Health Records
79 Citations2011Christine A. Caligtan, Patricia C. Dykes
For the oncology nurse, the transformation of health care and ICT will require nurses to educate patients and family members on available online resources for self management and health promotion.
Journal for Healthcare QualityThrough the Patientʼs Eyes: Understanding and Promoting Patient-Centered Care
72 Citations2003Margaret Genteis, Susan Edgman‐Levitan +2 more
PubMedModeling public health interventions for improved access to the gray literature.
58 Citations2005Anne M. Turner, Elizabeth D. Liddy +2 more
A model of key elements relating to PH interventions in the gray literature can be developed from the ground up through document analysis and input from members of the PH workforce.
The Permanente JournalSocial Media and the Health System
57 Citations2011Ted Eytan, Jeffrey Benabio +3 more
You know institutions tend to become static; they build walls around themselves to protect themselves from change, and eventually die, so you should fight that by opening up your thinking and ideas, and work for a change.
Health Education & BehaviorUse of Computer Kiosks for Breast Cancer Education in Five Community Settings
55 Citations2006Matthew W. Kreuter, Wynona J. Black +5 more
Patterns of use and characteristics of kiosk users in beauty salons, churches, neighborhood health centers, Laundromats, and social service agencies in St. Louis inform strategic decision making about technology dissemination and community outreach to women needing information about breast cancer and mammography.
International Journal of Environmental Research and Public HealthThe Role of Health Kiosks in 2009: Literature and Informant Review
49 Citations2009Ray Jones
Kiosks can provide patients with access to health systems in public locations, but with increasing home Internet access their usefulness is questioned and a role remains for integrated kiosks as part of patient ‘flow’.
Seminars in Oncology NursingPatient-Reported Symptoms and Quality of Life Integrated into Clinical Cancer Care
38 Citations2011Donna L. Berry
Assessing and incorporating patient preferences, engaging the patient in self-report, and extending the interaction to the place and time favored by the patient are necessary to bring meaning to the term "patient-centered."
Journal of Medical SystemsDelivering Consumer Health Information Digitally: A Comparison Between the Web and Touchscreen Kiosk
27 Citations2003David Nicholas, Paul Huntington +1 more
Employing survey and web log data the study presented here compares the use and users of two digital health information platforms geared toward consumers—web-sites and touchscreen information kiosks.
Seminars in Oncology NursingOnline Support of Patients and Survivors of Cancer
26 Citations2011Eun‐Ok Im
This literature review indicated five factors that influence the use of Internet cancer support groups (disease, background, cultural, need, and Internet use).
Journal of Immigrant and Minority HealthDisseminating Health Information and Diabetes Care for Latinos Via Electronic Information Kiosks
26 Citations2008Paul Matthews, Carolina Darbisi +3 more
Data from public use and interviews with focus group participants showed that users found the kiosks and their functions helpful and usable, though usage was moderated by presence or absence of a peer health educator (promotora).
Seminars in Oncology NursingTechnologies to Support End-of-Life Care
26 Citations2011George Demiris, Debra Parker Oliver +1 more
There are currently few informatics interventions designed specifically for palliative and hospice care and challenges such as interoperability, user acceptance, privacy, the digital divide, and allocation of resources all affect the diffusion of informatics tools in hospice.
